A question prompt sheet for adult patients with chronic kidney disease

Swati Lederer, Michael J. Fischer, Howard S. Gordon, Anuradha Wadhwa, Subhash Popli, Elisa J. Gordon

Research output: Contribution to journalArticle

6 Scopus citations

Abstract

Background: Patients with chronic kidney disease (CKD) commonly have unmet information needs. Greater patient participation in healthcare discussions can address these needs and improve health outcomes. We developed a patient-centered question prompt sheet (QPS) to engage CKD patients in healthcare conversations. Methods: We conducted a two phase, mixed-methods, cross-sectional study involving semi-structured telephone interviews. Patients with an estimated glomerular filtration rate (eGFR) <60 ml/min/1.73 m2, on dialysis, or with a kidney transplant were recruited from one Veterans Affairs (VA) nephrology clinic. Phase 1 interviews included open-ended questions assessing patients' CKD-related information needs and generated a preliminary 67-item QPS. Phase 2 interview participants rated the importance of asking each question on a 5-point Likert scale and provided open-ended feedback. All participants rated their willingness to use a CKD-QPS. Input from patient ratings, a multidisciplinary team, and from members of the National Kidney Disease Education Program (NKDEP) Coordinating Panel helped to shorten and refine the QPS. A qualitative thematic approach was used to analyze open-ended responses. Quantitative data were analyzed for means and proportions. Results: Eighty-five patients participated. Most were male (97 %), non-Hispanic white (71 %), and mean age was 67 years. Patients desired more information about CKD, particularly dialysis/transplant, and the relationship between CKD and comorbid medical conditions. The final QPS included 31-questions divided into 7 CKD subtopics. Most patients (88 %) reported being 'completely' or 'very' willing to use a CKD-QPS in future doctor visits. Conclusions: CKD patients have unmet information needs. We developed a QPS to engage CKD patients in healthcare discussions and to facilitate patient-centered care. Future research should assess whether the CKD-QPS addresses patients' information needs, enhances doctor-patient communication, and improves health outcomes.

Original languageEnglish (US)
Article number155
JournalBMC Nephrology
Volume17
Issue number1
DOIs
StatePublished - Oct 19 2016

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Keywords

  • Kidney disease
  • Patient-centered care
  • Shared-decision making

ASJC Scopus subject areas

  • Nephrology

Cite this

Lederer, S., Fischer, M. J., Gordon, H. S., Wadhwa, A., Popli, S., & Gordon, E. J. (2016). A question prompt sheet for adult patients with chronic kidney disease. BMC Nephrology, 17(1), [155]. https://doi.org/10.1186/s12882-016-0362-z