A telehealth approach to caregiver self-management following traumatic brain injury: A randomized controlled trial

Janet M. Powell, Robert Fraser, Jo Ann Brockway, Nancy Temkin, Kathleen R. Bell

Research output: Contribution to journalArticle

18 Citations (Scopus)

Abstract

Objective: To determine whether a telephone-based, individualized education and mentored problem-solving intervention would improve outcomes for caregivers of persons with traumatic brain injury (TBI). Design: Parallel group, randomized controlled trial with blinded outcome assessment. Setting: General community. Participants: A total of 153 caregivers (mean age = 49.7 years; 82% female; 54% spouses/partners, 35% parents) of persons with moderate to severe TBI who received acute and/or rehabilitation care at a level I trauma center. Eighty-two percent of participants were evaluated at 6-month follow-up. Intervention: Individualized education and mentored problem-solving intervention focused on caregivers' primary concerns delivered via up to 10 telephone calls at 2-week intervals. Main Outcome Measures: Composite of Bakas Caregiving Outcomes Scale (BCOS) and Brief Symptom Inventory (BSI-18) at 6 months post-TBI survivor discharge. Secondary measures included the Brief COPE. Results: Caregivers in the treatment arm scored higher on the BCOS-BSI composite (P =.032), with more active coping (P =.020) and less emotional venting (P =.028) as measured by the Brief COPE. Conclusions: An individualized education and mentored problem-solving approach delivered via telephone in the first few months following community discharge of the TBI survivor resulted in better caregiver outcomes than usual care. Consideration should be given to using this approach to augment the limited support typically offered to caregivers.

Original languageEnglish (US)
Pages (from-to)180-190
Number of pages11
JournalJournal of Head Trauma Rehabilitation
Volume31
Issue number3
DOIs
StatePublished - 2016

Fingerprint

Telemedicine
Self Care
Caregivers
Randomized Controlled Trials
Telephone
Education
Survivors
Outcome Assessment (Health Care)
Trauma Centers
Spouses
Traumatic Brain Injury
Rehabilitation
Parents
Equipment and Supplies

Keywords

  • Brain injuries
  • Caregivers
  • Problem solving
  • Randomized controlled trial
  • Telehealth
  • Telemedicine

ASJC Scopus subject areas

  • Rehabilitation
  • Clinical Neurology
  • Physical Therapy, Sports Therapy and Rehabilitation

Cite this

A telehealth approach to caregiver self-management following traumatic brain injury : A randomized controlled trial. / Powell, Janet M.; Fraser, Robert; Brockway, Jo Ann; Temkin, Nancy; Bell, Kathleen R.

In: Journal of Head Trauma Rehabilitation, Vol. 31, No. 3, 2016, p. 180-190.

Research output: Contribution to journalArticle

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