TY - JOUR
T1 - Acquisition, analysis, and sharing of data in 2015 and beyond
T2 - A survey of the landscape a conference report from the American heart association data summit 2015
AU - Antman, Elliott M.
AU - Benjamin, Emelia J.
AU - Harrington, Robert A.
AU - Houser, Steven R.
AU - Peterson, Eric D.
AU - Bauman, Mary Ann
AU - Brown, Nancy
AU - Bufalino, Vincent
AU - Califf, Robert M.
AU - Creager, Mark A.
AU - Daugherty, Alan
AU - Demets, David L.
AU - Dennis, Bernard P.
AU - Ebadollahi, Shahram
AU - Jessup, Mariell
AU - Lauer, Michael S.
AU - Lo, Bernard
AU - MacRae, Calum A.
AU - McConnell, Michael V.
AU - McCray, Alexa T.
AU - Mello, Michelle M.
AU - Mueller, Eric
AU - Newburger, Jane W.
AU - Okun, Sally
AU - Packer, Milton
AU - Philippakis, Anthony
AU - Ping, Peipei
AU - Prasoon, Prad
AU - Roger, Véronique L.
AU - Singer, Steve
AU - Temple, Robert
AU - Turner, Melanie B.
AU - Vigilante, Kevin
AU - Warner, John
AU - Wayte, Patrick
PY - 2015/11/1
Y1 - 2015/11/1
N2 - Background--A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies in the Big Data area. The concepts evolving from this forum may also inform other fields of medicine and science. Methods and Results--A total of 47 participants representing stakeholders from 7 domains (patients, basic scientists, clinical investigators, population researchers, clinicians and healthcare system administrators, industry, and regulatory authorities) participated in the conference. Presentation topics included updates on data as viewed from conventional medical and nonmedical sources, building and using Big Data repositories, articulation of the goals of data sharing, and principles of responsible data sharing. Facilitated breakout sessions were conducted to examine what each of the 7 stakeholder domains wants from Big Data under ideal circumstances and the possible roles that the AHA might play in meeting their needs. Important areas that are high priorities for further study regarding Big Data include a description of the methodology of how to acquire and analyze findings, validation of the veracity of discoveries from such research, and integration into investigative and clinical care aspects of future cardiovascular and stroke medicine. Potential roles that the AHA might consider include facilitating a standards discussion (eg, tools, methodology, and appropriate data use), providing education (eg, healthcare providers, patients, investigators), and helping build an interoperable digital ecosystem in cardiovascular and stroke science. Conclusion--There was a consensus across stakeholder domains that Big Data holds great promise for revolutionizing the way cardiovascular and stroke research is conducted and clinical care is delivered; however, there is a clear need for the creation of a vision of how to use it to achieve the desired goals. Potential roles for the AHA center around facilitating a discussion of standards, providing education, and helping establish a cardiovascular digital ecosystem. This ecosystem should be interoperable and needs to interface with the rapidly growing digital object environment of the modern-day healthcare system.
AB - Background--A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies in the Big Data area. The concepts evolving from this forum may also inform other fields of medicine and science. Methods and Results--A total of 47 participants representing stakeholders from 7 domains (patients, basic scientists, clinical investigators, population researchers, clinicians and healthcare system administrators, industry, and regulatory authorities) participated in the conference. Presentation topics included updates on data as viewed from conventional medical and nonmedical sources, building and using Big Data repositories, articulation of the goals of data sharing, and principles of responsible data sharing. Facilitated breakout sessions were conducted to examine what each of the 7 stakeholder domains wants from Big Data under ideal circumstances and the possible roles that the AHA might play in meeting their needs. Important areas that are high priorities for further study regarding Big Data include a description of the methodology of how to acquire and analyze findings, validation of the veracity of discoveries from such research, and integration into investigative and clinical care aspects of future cardiovascular and stroke medicine. Potential roles that the AHA might consider include facilitating a standards discussion (eg, tools, methodology, and appropriate data use), providing education (eg, healthcare providers, patients, investigators), and helping build an interoperable digital ecosystem in cardiovascular and stroke science. Conclusion--There was a consensus across stakeholder domains that Big Data holds great promise for revolutionizing the way cardiovascular and stroke research is conducted and clinical care is delivered; however, there is a clear need for the creation of a vision of how to use it to achieve the desired goals. Potential roles for the AHA center around facilitating a discussion of standards, providing education, and helping establish a cardiovascular digital ecosystem. This ecosystem should be interoperable and needs to interface with the rapidly growing digital object environment of the modern-day healthcare system.
KW - AHA Scientific Statements
KW - Clinical trials
KW - Data
KW - Epidemiology
KW - Ethics
KW - Mobile health
KW - Preclinical
UR - http://www.scopus.com/inward/record.url?scp=85006213908&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85006213908&partnerID=8YFLogxK
U2 - 10.1161/JAHA.115.002810
DO - 10.1161/JAHA.115.002810
M3 - Article
C2 - 26541391
AN - SCOPUS:85006213908
SN - 2047-9980
VL - 4
JO - Journal of the American Heart Association
JF - Journal of the American Heart Association
IS - 11
M1 - e002810
ER -