Abstract
BACKGROUND: Patient empowerment represents a potent tool for addressing racial, ethnic and socioeconomic disparities in health care, particularly for chronic conditions such as HIV infection that require active patient engagement. This multimodal intervention, developed in concert with HIV patients and clinicians, aims to provide HIV patients with the knowledge, skills, attitudes and tools to become more activated patients.
METHODS/DESIGN: Randomized controlled trial of a multimodal intervention designed to activate persons living with HIV. The intervention includes four components: 1) use of a web-enabled hand-held device (Apple iPod Touch) loaded with a Personal Health Record (ePHR) customized for HIV patients; 2) six 90-minute group-based training sessions in use of the device, internet and the ePHR; 3) a pre-visit coaching session; and 4) clinician education regarding how they can support activated patients. Outcome measures include pre- post changes in patient activation measure score (primary outcome), eHealth literacy, patient involvement in decision-making and care, medication adherence, preventive care, and HIV Viral Load.
DISCUSSION: We hypothesize that participants receiving the intervention will show greater improvement in empowerment and the intervention will reduce disparities in study outcomes. Disparities in these measures will be smaller than those in the usual care group. Findings have implications for activating persons living with HIV and for other marginalized groups living with chronic illness.
TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT02165735, 6/13/2014.
| Original language | English (US) |
|---|---|
| Number of pages | 1 |
| Journal | BMC Public Health |
| Volume | 15 |
| DOIs | |
| State | Published - Oct 16 2015 |
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ASJC Scopus subject areas
- Public Health, Environmental and Occupational Health
Cite this
Activation of persons living with HIV for treatment, the great study. / Fiscella, Kevin; Boyd, Michele; Brown, Julian; Carroll, Jennifer; Cassells, Andrea; Corales, Roberto; Cross, Wendi; El'Daher, Nayef; Farah, Subrina; Fine, Steven; Fowler, Richard; Hann, Ashley; Luque, Amneris; Rodriquez, Jennifer; Sanders, Mechelle; Tobin, Jonathan.
In: BMC Public Health, Vol. 15, 16.10.2015.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Activation of persons living with HIV for treatment, the great study
AU - Fiscella, Kevin
AU - Boyd, Michele
AU - Brown, Julian
AU - Carroll, Jennifer
AU - Cassells, Andrea
AU - Corales, Roberto
AU - Cross, Wendi
AU - El'Daher, Nayef
AU - Farah, Subrina
AU - Fine, Steven
AU - Fowler, Richard
AU - Hann, Ashley
AU - Luque, Amneris
AU - Rodriquez, Jennifer
AU - Sanders, Mechelle
AU - Tobin, Jonathan
PY - 2015/10/16
Y1 - 2015/10/16
N2 - BACKGROUND: Patient empowerment represents a potent tool for addressing racial, ethnic and socioeconomic disparities in health care, particularly for chronic conditions such as HIV infection that require active patient engagement. This multimodal intervention, developed in concert with HIV patients and clinicians, aims to provide HIV patients with the knowledge, skills, attitudes and tools to become more activated patients.METHODS/DESIGN: Randomized controlled trial of a multimodal intervention designed to activate persons living with HIV. The intervention includes four components: 1) use of a web-enabled hand-held device (Apple iPod Touch) loaded with a Personal Health Record (ePHR) customized for HIV patients; 2) six 90-minute group-based training sessions in use of the device, internet and the ePHR; 3) a pre-visit coaching session; and 4) clinician education regarding how they can support activated patients. Outcome measures include pre- post changes in patient activation measure score (primary outcome), eHealth literacy, patient involvement in decision-making and care, medication adherence, preventive care, and HIV Viral Load.DISCUSSION: We hypothesize that participants receiving the intervention will show greater improvement in empowerment and the intervention will reduce disparities in study outcomes. Disparities in these measures will be smaller than those in the usual care group. Findings have implications for activating persons living with HIV and for other marginalized groups living with chronic illness.TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT02165735, 6/13/2014.
AB - BACKGROUND: Patient empowerment represents a potent tool for addressing racial, ethnic and socioeconomic disparities in health care, particularly for chronic conditions such as HIV infection that require active patient engagement. This multimodal intervention, developed in concert with HIV patients and clinicians, aims to provide HIV patients with the knowledge, skills, attitudes and tools to become more activated patients.METHODS/DESIGN: Randomized controlled trial of a multimodal intervention designed to activate persons living with HIV. The intervention includes four components: 1) use of a web-enabled hand-held device (Apple iPod Touch) loaded with a Personal Health Record (ePHR) customized for HIV patients; 2) six 90-minute group-based training sessions in use of the device, internet and the ePHR; 3) a pre-visit coaching session; and 4) clinician education regarding how they can support activated patients. Outcome measures include pre- post changes in patient activation measure score (primary outcome), eHealth literacy, patient involvement in decision-making and care, medication adherence, preventive care, and HIV Viral Load.DISCUSSION: We hypothesize that participants receiving the intervention will show greater improvement in empowerment and the intervention will reduce disparities in study outcomes. Disparities in these measures will be smaller than those in the usual care group. Findings have implications for activating persons living with HIV and for other marginalized groups living with chronic illness.TRIAL REGISTRATION: ClinicalTrials.gov Identifier: NCT02165735, 6/13/2014.
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UR - http://www.scopus.com/inward/citedby.url?scp=85016925145&partnerID=8YFLogxK
U2 - 10.1186/s12889-015-2382-1
DO - 10.1186/s12889-015-2382-1
M3 - Article
C2 - 26474979
VL - 15
JO - BMC Public Health
JF - BMC Public Health
SN - 1471-2458
ER -