Barriers to transition in young adults with neurogenic bladder

G. M. Grimsby, R. Burgess, S. Culver, B. J. Schlomer, M. A. Jacobs

Research output: Contribution to journalArticle

14 Scopus citations

Abstract

Introduction: 'Transition' not only involves finding an adult healthcare provider, but also includes the process of developing the patient's ability to care for him/herself. Recent literature states that 40% of young adults with special healthcare needs are receiving the tools needed for transition. Pediatric urologists treating patients with complex anomalies, such as spina bifida, often anticipate poor outcomes for patients who are ill equipped for transition to adult care. The goal of this study was to identify potential barriers for young adults with neurogenic bladder when transitioning to independent care. Study design: A prospective IRB-approved study was performed on all patients with neurogenic bladder referred to the transitional urology clinic. Reasons for missed appointments were tracked, and all patients were asked to complete the Transition Readiness Assessment Questionnaire (TRAQ) in private prior to an appointment. The TRAQ responses are scaled 1-5, with higher numbers corresponding to higher transition readiness of each individual skill. The mean score for each question was calculated across all patients, and the mean TRAQ score was calculated across all questions for each patient. To assess if certain subgroups were more prepared for transition, mean scores were compared between sexes, patients aged

Original languageEnglish (US)
JournalJournal of Pediatric Urology
DOIs
StateAccepted/In press - Oct 27 2015

Keywords

  • Meningomyelocele
  • Neurogenic
  • Transition to adult care
  • Urinary bladder

ASJC Scopus subject areas

  • Urology
  • Pediatrics, Perinatology, and Child Health

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