Caring and Communicating: Observations on 19 Baby Doe Patients

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Under authority of Section 504 of the Rehabilitation Act of 1973, and stimulated by the well-publicized birth of a child with Down syndrome and esophageal atresia in 1982, the US Department of Health and Human Services has actively responded to reports of alleged discriminatory failure to care for handicapped infants. Investigators and consultants from the Office for Civil Rights have visited hospitals and interviewed various persons. Observations made and unofficial conclusions drawn by one participant in 19 such investigations relate not only to the care provided to these children but also to elements of communication with family, hospital staff, and others. Misunderstandings, faulty interpretations, and unrealistic expectations have resulted in bitter feelings, confusion, and frank hostility. These observations reveal an immediate need for reexamination of interpersonal communications in the context of caring for these children.

Original languageEnglish (US)
Pages (from-to)1082-1085
Number of pages4
JournalAmerican Journal of Diseases of Children
Volume139
Issue number11
DOIs
StatePublished - 1985

Fingerprint

Communication
United States Dept. of Health and Human Services
Infant Care
Esophageal Atresia
Confusion
Civil Rights
Hostility
Disabled Persons
Consultants
Down Syndrome
Emotions
Rehabilitation
Research Personnel
Parturition

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Caring and Communicating : Observations on 19 Baby Doe Patients. / Green, H. Gordon.

In: American Journal of Diseases of Children, Vol. 139, No. 11, 1985, p. 1082-1085.

Research output: Contribution to journalArticle

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