Challenges Faced by Latino Caregivers in Transportation of Children with Medical Complexity

Savithri Nageswaran, Aura I. Rosado, Mark S. Beveridge

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

BACKGROUND Transportation challenges affect access to health care. Our objective was to describe transportation challenges faced by Latino children with medical complexity and identify strategies that could address these challenges.METHODS This is a qualitative study. Seventy Latino children with medical complexity who were enrolled in a complex care program of a tertiary care children's hospital were followed for a median duration of 18 months. Qualitative data were care coordination notes for each child obtained from care coordinators' encounter logs and reported experiences. Using thematic content analysis and an iterative process, we identified recurrent themes related to transportation challenges.RESULTS Caregivers of Latino children with medical complexity face many challenges transporting their children to medical appointments. These include lack of vehicle, inability to drive, lack of driver's license due to immigration status, and lack of resources to maintain a vehicle. As a result, Latino children with medical complexity often need non-emergency medical transportation, but caregivers find these systems difficult to use, in part because of language difficulties. Thus, they rely on care coordinators to access non-emergency medical transportation. Transportation problems can lead to missed medical appointments for the child and lost work for the caregiver. We identified interrelated factors that contributed to transportation issues for Latino children with medical complexity and potential strategies to address them.LIMITATIONS The extent of transportation challenges cannot be discerned because this is a qualitative study.CONCLUSIONS Transportation is difficult for Latino children with medical complexity, who rely on non-emergency medical transportation to access medical services. Care coordinators play a major role in addressing transportation problems for Latino children with medical complexity and their caregivers.

Original languageEnglish (US)
Pages (from-to)358-364
Number of pages7
JournalNorth Carolina medical journal
Volume79
Issue number6
DOIs
StatePublished - Nov 1 2018
Externally publishedYes

Fingerprint

Hispanic Americans
Caregivers
Appointments and Schedules
Health Services Accessibility
Emigration and Immigration
Tertiary Healthcare
Licensure
Child Care
Language

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Challenges Faced by Latino Caregivers in Transportation of Children with Medical Complexity. / Nageswaran, Savithri; Rosado, Aura I.; Beveridge, Mark S.

In: North Carolina medical journal, Vol. 79, No. 6, 01.11.2018, p. 358-364.

Research output: Contribution to journalArticle

@article{f5fd94fddc5449dfbddfac97366f790e,
title = "Challenges Faced by Latino Caregivers in Transportation of Children with Medical Complexity",
abstract = "BACKGROUND Transportation challenges affect access to health care. Our objective was to describe transportation challenges faced by Latino children with medical complexity and identify strategies that could address these challenges.METHODS This is a qualitative study. Seventy Latino children with medical complexity who were enrolled in a complex care program of a tertiary care children's hospital were followed for a median duration of 18 months. Qualitative data were care coordination notes for each child obtained from care coordinators' encounter logs and reported experiences. Using thematic content analysis and an iterative process, we identified recurrent themes related to transportation challenges.RESULTS Caregivers of Latino children with medical complexity face many challenges transporting their children to medical appointments. These include lack of vehicle, inability to drive, lack of driver's license due to immigration status, and lack of resources to maintain a vehicle. As a result, Latino children with medical complexity often need non-emergency medical transportation, but caregivers find these systems difficult to use, in part because of language difficulties. Thus, they rely on care coordinators to access non-emergency medical transportation. Transportation problems can lead to missed medical appointments for the child and lost work for the caregiver. We identified interrelated factors that contributed to transportation issues for Latino children with medical complexity and potential strategies to address them.LIMITATIONS The extent of transportation challenges cannot be discerned because this is a qualitative study.CONCLUSIONS Transportation is difficult for Latino children with medical complexity, who rely on non-emergency medical transportation to access medical services. Care coordinators play a major role in addressing transportation problems for Latino children with medical complexity and their caregivers.",
author = "Savithri Nageswaran and Rosado, {Aura I.} and Beveridge, {Mark S.}",
year = "2018",
month = "11",
day = "1",
doi = "10.18043/ncm.79.6.358",
language = "English (US)",
volume = "79",
pages = "358--364",
journal = "North Carolina Medical Journal",
issn = "0029-2559",
publisher = "North Carolina Medical Society",
number = "6",

}

TY - JOUR

T1 - Challenges Faced by Latino Caregivers in Transportation of Children with Medical Complexity

AU - Nageswaran, Savithri

AU - Rosado, Aura I.

AU - Beveridge, Mark S.

PY - 2018/11/1

Y1 - 2018/11/1

N2 - BACKGROUND Transportation challenges affect access to health care. Our objective was to describe transportation challenges faced by Latino children with medical complexity and identify strategies that could address these challenges.METHODS This is a qualitative study. Seventy Latino children with medical complexity who were enrolled in a complex care program of a tertiary care children's hospital were followed for a median duration of 18 months. Qualitative data were care coordination notes for each child obtained from care coordinators' encounter logs and reported experiences. Using thematic content analysis and an iterative process, we identified recurrent themes related to transportation challenges.RESULTS Caregivers of Latino children with medical complexity face many challenges transporting their children to medical appointments. These include lack of vehicle, inability to drive, lack of driver's license due to immigration status, and lack of resources to maintain a vehicle. As a result, Latino children with medical complexity often need non-emergency medical transportation, but caregivers find these systems difficult to use, in part because of language difficulties. Thus, they rely on care coordinators to access non-emergency medical transportation. Transportation problems can lead to missed medical appointments for the child and lost work for the caregiver. We identified interrelated factors that contributed to transportation issues for Latino children with medical complexity and potential strategies to address them.LIMITATIONS The extent of transportation challenges cannot be discerned because this is a qualitative study.CONCLUSIONS Transportation is difficult for Latino children with medical complexity, who rely on non-emergency medical transportation to access medical services. Care coordinators play a major role in addressing transportation problems for Latino children with medical complexity and their caregivers.

AB - BACKGROUND Transportation challenges affect access to health care. Our objective was to describe transportation challenges faced by Latino children with medical complexity and identify strategies that could address these challenges.METHODS This is a qualitative study. Seventy Latino children with medical complexity who were enrolled in a complex care program of a tertiary care children's hospital were followed for a median duration of 18 months. Qualitative data were care coordination notes for each child obtained from care coordinators' encounter logs and reported experiences. Using thematic content analysis and an iterative process, we identified recurrent themes related to transportation challenges.RESULTS Caregivers of Latino children with medical complexity face many challenges transporting their children to medical appointments. These include lack of vehicle, inability to drive, lack of driver's license due to immigration status, and lack of resources to maintain a vehicle. As a result, Latino children with medical complexity often need non-emergency medical transportation, but caregivers find these systems difficult to use, in part because of language difficulties. Thus, they rely on care coordinators to access non-emergency medical transportation. Transportation problems can lead to missed medical appointments for the child and lost work for the caregiver. We identified interrelated factors that contributed to transportation issues for Latino children with medical complexity and potential strategies to address them.LIMITATIONS The extent of transportation challenges cannot be discerned because this is a qualitative study.CONCLUSIONS Transportation is difficult for Latino children with medical complexity, who rely on non-emergency medical transportation to access medical services. Care coordinators play a major role in addressing transportation problems for Latino children with medical complexity and their caregivers.

UR - http://www.scopus.com/inward/record.url?scp=85056254181&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85056254181&partnerID=8YFLogxK

U2 - 10.18043/ncm.79.6.358

DO - 10.18043/ncm.79.6.358

M3 - Article

C2 - 30397081

AN - SCOPUS:85056254181

VL - 79

SP - 358

EP - 364

JO - North Carolina Medical Journal

JF - North Carolina Medical Journal

SN - 0029-2559

IS - 6

ER -