Changes in parents after the death of a child from cancer

Mary Jo Gilmer, Terrah L. Foster, Kathryn Vannatta, Maru Barrera, Betty Davies, Mary S. Dietrich, Diane L. Fairclough, Jamie Grollman, Cynthia A. Gerhardt

Research output: Contribution to journalArticle

22 Citations (Scopus)

Abstract

Context. Few studies have compared multiple perspectives of changes experienced by parents after a child's death. Objectives. This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the death of a child from cancer. Methods. Mothers (n = 36), fathers (n = 24), and siblings (n = 39) from 40 families were recruited from three hospitals in the U.S. and Canada three to 12 months after the death (M= 10.7, SD = 3.5). Semistructured interviews with open-ended questions were conducted in the home with each participating parent and sibling separately. Content analysis identified emerging themes, and frequencies were compared between each paired set of reports (mother vs. sibling, father vs. sibling, and mother vs. father). Results. Parents and siblings identified two major categories of change experienced by bereaved parents. These changes occurred in their personal lives (e.g., emotions, perspectives and priorities, physical state, work habits, coping/ behaviors, spiritual beliefs, and feeling something is missing) and relationships (e.g., family, others). Ninety-four percent of the mothers, 87% of the fathers, and 69% of the siblings reported parental changes in at least one of these categories. Parents were more likely to report changes in priorities, whereas siblings reported more sadness in parents after the death. Conclusion. Positive and negative changes in parents after the death of a child from cancer occur in both personal and relational domains. Additional research is needed to determine the impact of a child's death on bereaved parents over time and to develop strategies to promote healthy adjustment.

Original languageEnglish (US)
Pages (from-to)572-582
Number of pages11
JournalJournal of Pain and Symptom Management
Volume44
Issue number4
DOIs
StatePublished - Oct 2012

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Keywords

  • Bereavement
  • Cancer
  • Change
  • Parents

ASJC Scopus subject areas

  • Anesthesiology and Pain Medicine
  • Clinical Neurology
  • Nursing(all)

Cite this

Gilmer, M. J., Foster, T. L., Vannatta, K., Barrera, M., Davies, B., Dietrich, M. S., ... Gerhardt, C. A. (2012). Changes in parents after the death of a child from cancer. Journal of Pain and Symptom Management, 44(4), 572-582. https://doi.org/10.1016/j.jpainsymman.2011.10.017

Changes in parents after the death of a child from cancer. / Gilmer, Mary Jo; Foster, Terrah L.; Vannatta, Kathryn; Barrera, Maru; Davies, Betty; Dietrich, Mary S.; Fairclough, Diane L.; Grollman, Jamie; Gerhardt, Cynthia A.

In: Journal of Pain and Symptom Management, Vol. 44, No. 4, 10.2012, p. 572-582.

Research output: Contribution to journalArticle

Gilmer, MJ, Foster, TL, Vannatta, K, Barrera, M, Davies, B, Dietrich, MS, Fairclough, DL, Grollman, J & Gerhardt, CA 2012, 'Changes in parents after the death of a child from cancer', Journal of Pain and Symptom Management, vol. 44, no. 4, pp. 572-582. https://doi.org/10.1016/j.jpainsymman.2011.10.017
Gilmer MJ, Foster TL, Vannatta K, Barrera M, Davies B, Dietrich MS et al. Changes in parents after the death of a child from cancer. Journal of Pain and Symptom Management. 2012 Oct;44(4):572-582. https://doi.org/10.1016/j.jpainsymman.2011.10.017
Gilmer, Mary Jo ; Foster, Terrah L. ; Vannatta, Kathryn ; Barrera, Maru ; Davies, Betty ; Dietrich, Mary S. ; Fairclough, Diane L. ; Grollman, Jamie ; Gerhardt, Cynthia A. / Changes in parents after the death of a child from cancer. In: Journal of Pain and Symptom Management. 2012 ; Vol. 44, No. 4. pp. 572-582.
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abstract = "Context. Few studies have compared multiple perspectives of changes experienced by parents after a child's death. Objectives. This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the death of a child from cancer. Methods. Mothers (n = 36), fathers (n = 24), and siblings (n = 39) from 40 families were recruited from three hospitals in the U.S. and Canada three to 12 months after the death (M= 10.7, SD = 3.5). Semistructured interviews with open-ended questions were conducted in the home with each participating parent and sibling separately. Content analysis identified emerging themes, and frequencies were compared between each paired set of reports (mother vs. sibling, father vs. sibling, and mother vs. father). Results. Parents and siblings identified two major categories of change experienced by bereaved parents. These changes occurred in their personal lives (e.g., emotions, perspectives and priorities, physical state, work habits, coping/ behaviors, spiritual beliefs, and feeling something is missing) and relationships (e.g., family, others). Ninety-four percent of the mothers, 87{\%} of the fathers, and 69{\%} of the siblings reported parental changes in at least one of these categories. Parents were more likely to report changes in priorities, whereas siblings reported more sadness in parents after the death. Conclusion. Positive and negative changes in parents after the death of a child from cancer occur in both personal and relational domains. Additional research is needed to determine the impact of a child's death on bereaved parents over time and to develop strategies to promote healthy adjustment.",
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