Existing data sources for heart failure research offer advantages and disadvantages for comparative effectiveness research. Clinical registries collect detailed information about disease presentation, treatment, and outcomes on a large number of patients and provide the " real-world" population that is the hallmark of comparative effectiveness research. Data are not collected longitudinally, however, and follow-up is often limited. Large administrative datasets provide the broadest population coverage with longitudinal outcomes follow-up but lack clinical detail. Linking clinical registries with other databases to assess longitudinal outcomes holds great promise.
- Clinical registries
- Comparative effectiveness research
- Heart failure research
ASJC Scopus subject areas
- Cardiology and Cardiovascular Medicine