Databases for pediatric cardiac transplantation: The united network for organ sharing/scientific registry of transplant recipients (unos/srtr) and the pediatric heart transplant study (PHTS)

Research output: Chapter in Book/Report/Conference proceedingChapter

Abstract

Collection, analysis, and dissemination of data have been part of the transplantation since its earliest days. The two largest databases containing information on pediatric cardiac transplant patients are the United Network for Organ Sharing/Scientific Registry of Transplant Recipients (UNOS/SRTR) database and the Pediatric Heart Transplant Study (PHTS). These data have enabled examination of patients undergoing transplantation, including modeling of outcomes, analysis of allocation decisions, and the examination of criteria for listing. Extensive literature exists utilizing this data, but must be read critically, recognizing the limitations presented by missing variables (whether uncollected or collected but left blank), reproducibility, and small sample sizes among pediatric patients. However, despite these limitations, these datasets provide an important resource in the ongoing examination of cardiac transplantation in children.

Original languageEnglish (US)
Title of host publicationPediatric and Congenital Cardiac Care
Subtitle of host publicationVolume 1: Outcomes Analysis
PublisherSpringer-Verlag London Ltd
Pages193-210
Number of pages18
ISBN (Electronic)9781447165873
ISBN (Print)9781447165866
DOIs
StatePublished - Jan 1 2015

Keywords

  • Cardiac failure
  • Congenital cardiac disease
  • Pediatric cardiac disease
  • Pediatric cardiac failure
  • Pediatric cardiac transplantation
  • Pediatric heart transplant study (PHTS)
  • Transplantation
  • United network for organ sharing/scientific registry of transplant recipients (UNOS/SRTR) database

ASJC Scopus subject areas

  • Medicine(all)

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