Developing an audio-based communication tool for NICU discharge of Latino families with imited English proficiency

Sara Munoz-Blanco, Renee D. Boss, Lisa Ross DeCamp, Pamela K. Donohue

Research output: Contribution to journalArticlepeer-review

Abstract

Objective: Research shows NICU Latino parents with limited English proficiency (LEP) feel less comfortable asking questions and participating in medical decision-making, which may negatively affect transition to community healthcare. Question prompt lists (QPL), suggested questions sometimes drawn from families and providers, can improve family-centered communication. We explored clinician and parent perceptions to inform development of and pilot a NICU discharge QPL. Methods: Focus groups with NICU and primary care providers explored perceived educational needs of Latino parents LEP and barriers to effective transition to community healthcare. Semi-structured interviews with Latino parents LEP explored perceptions of knowledge gaps and recommendations to improve the transition process. A Spanish audio QPL for parents and an English written version for providers were developed and pilot tested for acceptability. Results: Provider focus groups (n = 27) and parent interviews (n = 19) identified themes: decreased parent activation, knowledge gaps, limited-use interpreters, unfamiliarity with healthcare system, and social isolation as barriers to smooth NICU-to-home transition. Providers (n = 11) and parents (n = 10) favored QPL introduction early in NICU admission, finding it useful to improve communication and transition processes for families. Conclusion: Our QPL may address challenges faced by Latino parents LEP when transitioning home. Practice implications: QPLs may improve Latino NICU infants’ healthcare outcomes.

Original languageEnglish (US)
JournalPatient Education and Counseling
DOIs
StateAccepted/In press - 2021

Keywords

  • LEP
  • Latino
  • NICU
  • NICU Latino parent
  • NICU discharge
  • NICU parent
  • QPL
  • Question Prompt List
  • communication
  • limited English proficiency

ASJC Scopus subject areas

  • Medicine(all)

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