TY - JOUR
T1 - Enfeeblement in Essential Tremor
T2 - Development and Validation of a New Psychometric Measure
AU - Trujillo Diaz, Daniel
AU - Cersonsky, Tess E.K.
AU - Kellner, Sarah
AU - Zdrodowska, Maria Anna
AU - Hickman, Ruby
AU - Cosentino, Stephanie
AU - Monin, Joan K.
AU - Louis, Elan D.
N1 - Funding Information:
The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by the National Institutes of Health: NINDS R01NS086736.
Publisher Copyright:
© The Author(s) 2019.
PY - 2019/5/1
Y1 - 2019/5/1
N2 - Introduction: Despite a growing body of knowledge regarding essential tremor (ET), past studies have fallen short in capturing the full impact of ET on patients and caregivers. We propose enfeeblement (i.e., having the qualities of being prematurely old, helpless, or debilitated) as a novel clinical outcome measure in ET. Due to the lack of enfeeblement scales for ET in the literature, we developed and validated an enfeeblement scale for ET. Methods: The Essential Tremor Enfeeblement Survey (ETES) consists of eight 5-point Likert-type scale questions and is designed to be a caregiver-reported outcome. Results: Enfeeblement scores showed a floor effect of 15.3%, no ceiling effects, and demonstrated good overall test–retest reliability (intraclass correlation coefficient = 0.73), favorable internal consistency (Cronbach α coefficient = 0.92) and good convergent validity. Conclusion: The ETES has robust properties. Aside from future studies of enfeeblement in ET, enfeeblement should be explored more broadly as a psychometric measure across other neurological disorders.
AB - Introduction: Despite a growing body of knowledge regarding essential tremor (ET), past studies have fallen short in capturing the full impact of ET on patients and caregivers. We propose enfeeblement (i.e., having the qualities of being prematurely old, helpless, or debilitated) as a novel clinical outcome measure in ET. Due to the lack of enfeeblement scales for ET in the literature, we developed and validated an enfeeblement scale for ET. Methods: The Essential Tremor Enfeeblement Survey (ETES) consists of eight 5-point Likert-type scale questions and is designed to be a caregiver-reported outcome. Results: Enfeeblement scores showed a floor effect of 15.3%, no ceiling effects, and demonstrated good overall test–retest reliability (intraclass correlation coefficient = 0.73), favorable internal consistency (Cronbach α coefficient = 0.92) and good convergent validity. Conclusion: The ETES has robust properties. Aside from future studies of enfeeblement in ET, enfeeblement should be explored more broadly as a psychometric measure across other neurological disorders.
KW - clinical outcome measure
KW - enfeeblement
KW - essential tremor
KW - psychometrics
KW - validation
UR - http://www.scopus.com/inward/record.url?scp=85062963742&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85062963742&partnerID=8YFLogxK
U2 - 10.1177/0891988719834345
DO - 10.1177/0891988719834345
M3 - Article
C2 - 30857453
AN - SCOPUS:85062963742
SN - 0891-9887
VL - 32
SP - 145
EP - 151
JO - Journal of Geriatric Psychiatry and Neurology
JF - Journal of Geriatric Psychiatry and Neurology
IS - 3
ER -