Ethical issues in implementing national-level health data warehouses in developing countries

Milka B. Gesicho, Troy D. Moon, Elizabeth Heitman, Martin C. Were

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

National Health Data Warehouses (NHDWHs) promise to improve individual and population health. These systems are now increasingly being deployed in low- and middle-income countries (LMICs), given increased recognition of the value of data analytics in informing decision-making. However, ethical issues relevant to implementation of NHDWHs in LMICs remain largely ignored or, at best, inadequately addressed. In this paper, we highlight and critically analyze several of the key ethical issues, including privacy, informed consent and trust, confidentiality and security, secondary data use, sustainability and implementation validity, risk-benefit ratio, governance and conflict of interest, justice, equity, access, and collaborative partnerships. We then provide a set of guiding principles and points to consider for countries and implementers to guide further decision-making around ethics of implementing NHDWHs within LMICs.

Original languageEnglish (US)
Title of host publicationMEDINFO 2017
Subtitle of host publicationPrecision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics
PublisherIOS Press
Pages718-722
Number of pages5
ISBN (Electronic)9781614998297
DOIs
StatePublished - Jan 1 2017
Event16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017 - Hangzhou, China
Duration: Aug 21 2017Aug 25 2017

Publication series

NameStudies in Health Technology and Informatics
Volume245
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Other

Other16th World Congress of Medical and Health Informatics: Precision Healthcare through Informatics, MedInfo 2017
CountryChina
CityHangzhou
Period8/21/178/25/17

Keywords

  • Developing countries
  • Ethics
  • Information systems

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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  • Cite this

    Gesicho, M. B., Moon, T. D., Heitman, E., & Were, M. C. (2017). Ethical issues in implementing national-level health data warehouses in developing countries. In MEDINFO 2017: Precision Healthcare through Informatics - Proceedings of the 16th World Congress on Medical and Health Informatics (pp. 718-722). (Studies in Health Technology and Informatics; Vol. 245). IOS Press. https://doi.org/10.3233/978-1-61499-830-3-718