Guidelines for the standard monitoring of patients with thalassemia: Report of the thalassemia longitudinal cohort

Venée N. Tubman; Ellen B. Fung; Maria Vogiatzi; Alexis A. Thompson; Zora R. Rogers; Ellis J. Neufeld; Janet L. Kwiatkowski

doi:10.1097/MPH.0000000000000307

Guidelines for the standard monitoring of patients with thalassemia: Report of the thalassemia longitudinal cohort

Venée N. Tubman, Ellen B. Fung, Maria Vogiatzi, Alexis A. Thompson, Zora R. Rogers, Ellis J. Neufeld, Janet L. Kwiatkowski

Research output: Contribution to journal › Article › peer-review

52 Scopus citations

Abstract

Chronic transfusion therapy has played a central role in extending life expectancy for patients with hemoglobinopathies such as thalassemia. However, this life-saving therapy is associated with numerous complications that now comprise the bulk of management considerations for patients with thalassemia. This review reports on the experience of the Thalassemia Longitudinal Cohort and reviews available literature to establish guidelines for the management of patients with thalassemia.

Original language	English (US)
Pages (from-to)	e162-e169
Journal	Journal of Pediatric Hematology/Oncology
Volume	37
Issue number	3
DOIs	https://doi.org/10.1097/MPH.0000000000000307
State	Published - Apr 7 2015

Keywords

endocrinopathy
iron overload
thalassemia
transfusion
treatment

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health
Hematology
Oncology

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abstract = "Chronic transfusion therapy has played a central role in extending life expectancy for patients with hemoglobinopathies such as thalassemia. However, this life-saving therapy is associated with numerous complications that now comprise the bulk of management considerations for patients with thalassemia. This review reports on the experience of the Thalassemia Longitudinal Cohort and reviews available literature to establish guidelines for the management of patients with thalassemia.",

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AB - Chronic transfusion therapy has played a central role in extending life expectancy for patients with hemoglobinopathies such as thalassemia. However, this life-saving therapy is associated with numerous complications that now comprise the bulk of management considerations for patients with thalassemia. This review reports on the experience of the Thalassemia Longitudinal Cohort and reviews available literature to establish guidelines for the management of patients with thalassemia.

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Guidelines for the standard monitoring of patients with thalassemia: Report of the thalassemia longitudinal cohort

Abstract

Keywords

ASJC Scopus subject areas

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