Health Disparities in Pediatric Epilepsy: Methods and Lessons Learned

Janelle Wagner, Sonal Bhatia, B. Oyinkan Marquis, Imelda Vetter, Christopher W. Beatty, Rebecca Garcia, Charuta Joshi, Gogi Kumar, Kavya Rao, Nilika Singhal, Karen Skjei

Research output: Contribution to journalReview articlepeer-review

Abstract

Epilepsy affects 1% of youth and is associated with neurocognitive and psychosocial comorbidities, increased risk of mortality, and poor health-related outcomes. Health disparities in children and youth with epilepsy (CYE) have been understudied. A Special Interest Group (SIG) within the Pediatric Epilepsy Research Consortium is conducting a scoping review to systematically assess the literature and highlight the gaps in access to clinical care and management of pediatric epilepsy. The methodology for this review is presented. In conducting a peer-reviewed assessment of the scope of health disparities in pediatric epilepsy, we learned that developing the methodology for and conducting a comprehensive scoping review with multiple contributors resulted in a time-intensive process. While there is an evidence to suggest that health disparities do exist in CYE, very few studies have focused on these disparities. Disparity results are often not included in key elements of articles, lending them to be underemphasized and underrecognized. Preliminary conclusions inform several important research considerations.

Original languageEnglish (US)
JournalJournal of Clinical Psychology in Medical Settings
DOIs
StateAccepted/In press - 2022
Externally publishedYes

Keywords

  • Health Disparities
  • Health Related Outcomes
  • Pediatric Epilepsy
  • Social Determinants of Health

ASJC Scopus subject areas

  • Clinical Psychology

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