Health supervision for children with sickle cell disease

Peter A. Lane, George R. Buchanan, Franklin Desposito, Charles H. Pegelow, Elliott P. Vichinsky, Doris L. Wethers, Gerald M. Woods

Research output: Contribution to journalReview articlepeer-review

153 Scopus citations

Abstract

Sickle cell disease (SCD) is a group of complex genetic disorders with multisystem manifestations. This statement provides pediatricians in primary care and subspecialty practice with an overview of the genetics, diagnosis, clinical manifestations, and treatment of SCD. Specialized comprehensive medical care decreases morbidity and mortality during childhood. The provision of comprehensive care is a time-intensive endeavor that includes ongoing patient and family education, periodic comprehensive evaluations and other disease-specific health maintenance services, psychosocial care, and genetic counseling. Timely and appropriate treatment of acute illness is critical, because life-threatening complications develop rapidly. It is essential that every child with SCD receive comprehensive care that is coordinated through a medical home with appropriate expertise.

Original languageEnglish (US)
Pages (from-to)526-535
Number of pages10
JournalPediatrics
Volume109
Issue number3
DOIs
StatePublished - 2002

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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