@article{aa64d5708ae74809aafb3cb5b5b38533,
title = "International Initiative for Outcomes (INFO) for vitiligo: workshops with patients with vitiligo on repigmentation",
abstract = "Background: There is no cure or firm clinical recommendations for the treatment of vitiligo. One of the main issues is the heterogeneity of outcome measures used in randomized controlled trials for vitiligo. Objectives: To define successful repigmentation from the patients{\textquoteright} point of view and to propose how and when repigmentation should be evaluated in clinical trials in vitiligo. Methods: We conducted three workshops with patients with vitiligo and their parents or caregivers. Workshop 1 was held at World Vitiligo Day (Detroit, MI), workshop 2 at the University of Texas Southwestern Medical Center and workshop 3 at the Vitiligo and Pigmentation Institute of Southern California, University of California. Results: Seventy-three participants were recruited. Consensus on the following questions was achieved unanimously: (i) the definition of {\textquoteleft}successful repigmentation{\textquoteright} was 80–100% of repigmentation of a target lesion and (ii) both an objective and a subjective scale to measure repigmentation should be used. Conclusions: This was the largest patients{\textquoteright} outcomes workshop. We followed the guidance from the CSG-COUSIN and the Vitiligo Global Issues Consensus Group. Our recommendations to use percentage of repigmentation quartiles (0–25%, 26–50%, 51–79%, 80–100%) and the Vitiligo Noticeability Scale are based on the best available current evidence. A limitation of the research is that the workshops were conducted only in the U.S.A., due to pre-existing organisational support and the availability of funding.",
author = "V. Eleftheriadou and I. Hamzavi and Pandya, {A. G.} and P. Grimes and Harris, {J. E.} and Huggins, {R. H.} and Lim, {H. W.} and N. Elbuluk and B. Bhatia and A. Tovar-Garza and Nahhas, {A. F.} and T. Braunberger and K. Ezzedine",
note = "Funding Information: We are extremely grateful to all of the workshop participants, the GVF, the VStrong Detroit vitiligo support group, members of the VGICG and the Department of Dermatology, Henry Ford Hospital, Detroit, Michigan, U.S.A. We are also thankful to Professor A. Ta{\"i}eb and Professor M. Picardo for their continuous support of the vitiligo outcomes initiative on behalf of the International Federation of Pigment Cell Societies. Funding Information: We conducted three workshops with patients with vitiligo and their parents or caregivers. The first workshop took place during World Vitiligo Day, which was held in Detroit, Michigan on 24 June 2017. This workshop was organized by the VStrong Detroit vitiligo support group and supported by the Global Vitiligo Foundation (GVF), members of the VGICG and the Department of Dermatology, Henry Ford Hospital, Detroit, Michigan, U.S.A. Funding Information: Participants for the first workshop (Detroit, Michigan) were identified through the attendees of the World Vitiligo Day in the U.S.A. The workshop was supported by the GVF, which is a physician-led organization with the mission to improve the lives of people living with vitiligo. The GVF was established in 2011 by Henry Ford Hospital physicians, Iltefat Hamzavi and Henry W. Lim, who continue to serve the organization today with members from over 15 countries. Publisher Copyright: {\textcopyright} 2018 British Association of Dermatologists",
year = "2019",
month = mar,
doi = "10.1111/bjd.17013",
language = "English (US)",
volume = "180",
pages = "574--579",
journal = "British Journal of Dermatology",
issn = "0007-0963",
publisher = "Wiley-Blackwell",
number = "3",
}