Measuring health-related quality of life with the parental opinions of pediatric constipation questionnaire

Alan H. Silverman, Kristoffer S. Berlin, Carlo Di Lorenzo, Samuel Nurko, Rebecca C. Kamody, Ananthasekar Ponnambalam, Suzanne Mugie, Christina Gorges, Rina Sanghavi, Manu R. Sood

Research output: Contribution to journalArticlepeer-review

11 Scopus citations

Abstract

Objectives: The purpose of this study was to develop a caregiver-completed constipation condition-specific health-related quality of life (HRQL) instrument. Methods: 410 caregivers of children aged 2-18 years completed the Parental Opinions of Pediatric Constipation (POOPC), the PedsQL Generic Core Scales, PedQL Family Impact Module, Pediatric Symptom Checklist, the Functional Disability Inventory, the Pediatric Inventory for Parents, and a demographic questionnaire. Exploratory and confirmatory factor analyses were conducted to assess the psychometric properties of the POOPC. Results: Analyses yielded four factors called Parental Burden/Distress, Family Conflict, Difficulties with the Medical Team, and Worry about Social Impact that reflect problems in HRQL secondary to constipation and soiling, which were generally more strongly correlated with similar measures relative to a general measure of youth's psychosocial functioning. Conclusion: The POOPC is a psychometrically sound measure, which may be useful to clinicians and researchers identifying domains of treatment needs for children and their families.

Original languageEnglish (US)
Pages (from-to)814-824
Number of pages11
JournalJournal of pediatric psychology
Volume40
Issue number8
DOIs
StatePublished - Sep 2015

Keywords

  • Assessment
  • Elimination disorders
  • Encopresis
  • Health-related quality of life

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology

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