TY - JOUR
T1 - Measuring health-related quality of life with the parental opinions of pediatric constipation questionnaire
AU - Silverman, Alan H.
AU - Berlin, Kristoffer S.
AU - Di Lorenzo, Carlo
AU - Nurko, Samuel
AU - Kamody, Rebecca C.
AU - Ponnambalam, Ananthasekar
AU - Mugie, Suzanne
AU - Gorges, Christina
AU - Sanghavi, Rina
AU - Sood, Manu R.
N1 - Publisher Copyright:
© The Author 2015. Published by Oxford University Press on behalf of the Society of Pediatric Psychology. All rights reserved.
PY - 2015/9
Y1 - 2015/9
N2 - Objectives: The purpose of this study was to develop a caregiver-completed constipation condition-specific health-related quality of life (HRQL) instrument. Methods: 410 caregivers of children aged 2-18 years completed the Parental Opinions of Pediatric Constipation (POOPC), the PedsQL Generic Core Scales, PedQL Family Impact Module, Pediatric Symptom Checklist, the Functional Disability Inventory, the Pediatric Inventory for Parents, and a demographic questionnaire. Exploratory and confirmatory factor analyses were conducted to assess the psychometric properties of the POOPC. Results: Analyses yielded four factors called Parental Burden/Distress, Family Conflict, Difficulties with the Medical Team, and Worry about Social Impact that reflect problems in HRQL secondary to constipation and soiling, which were generally more strongly correlated with similar measures relative to a general measure of youth's psychosocial functioning. Conclusion: The POOPC is a psychometrically sound measure, which may be useful to clinicians and researchers identifying domains of treatment needs for children and their families.
AB - Objectives: The purpose of this study was to develop a caregiver-completed constipation condition-specific health-related quality of life (HRQL) instrument. Methods: 410 caregivers of children aged 2-18 years completed the Parental Opinions of Pediatric Constipation (POOPC), the PedsQL Generic Core Scales, PedQL Family Impact Module, Pediatric Symptom Checklist, the Functional Disability Inventory, the Pediatric Inventory for Parents, and a demographic questionnaire. Exploratory and confirmatory factor analyses were conducted to assess the psychometric properties of the POOPC. Results: Analyses yielded four factors called Parental Burden/Distress, Family Conflict, Difficulties with the Medical Team, and Worry about Social Impact that reflect problems in HRQL secondary to constipation and soiling, which were generally more strongly correlated with similar measures relative to a general measure of youth's psychosocial functioning. Conclusion: The POOPC is a psychometrically sound measure, which may be useful to clinicians and researchers identifying domains of treatment needs for children and their families.
KW - Assessment
KW - Elimination disorders
KW - Encopresis
KW - Health-related quality of life
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U2 - 10.1093/jpepsy/jsv028
DO - 10.1093/jpepsy/jsv028
M3 - Article
C2 - 25840448
AN - SCOPUS:84943181607
SN - 0146-8693
VL - 40
SP - 814
EP - 824
JO - Journal of pediatric psychology
JF - Journal of pediatric psychology
IS - 8
ER -