TY - JOUR
T1 - Participant-proxy agreement on objective and subjective aspects of societal participation following traumatic brain injury
AU - Hart, Tessa
AU - Sherer, Mark
AU - Temkin, Nancy
AU - Whyte, John
AU - Dikmen, Sureyya
AU - Heinemann, Allen W.
AU - Bell, Kathleen
PY - 2010/9/1
Y1 - 2010/9/1
N2 - Objective: To examine congruence between participant (P) and significant other (SO) reports on societal participation in 3 objective domains (economic, community, and social activities) and subjective satisfaction with participation at 1 year after traumatic brain injury (TBI). Participants: Ninety-seven persons with moderate to severe TBI and their SOs (27 spouses/partners, 47 parents, 23 other relatives/friends). Main Outcome Measure: Community Participation Indicators questionnaire, divided into Objective (Economic, Community, Social) and Subjective (Satisfaction) subscales. Design: Prospective correlational study. Results: P-SO congruence differed by domain of participation, with Economic and Community indicators showing higher agreement than Social and Satisfaction items. Congruence was not affected by P-SO relationship or whether the pair lived together. However, pairs who spent at least daily time together had significantly higher agreement on Satisfaction items than pairs who were together less often. Congruence was not predicted by SOs self-reported degree of awareness of Ps concerns. Severity of TBI, within the range represented in this sample, had no effect on P-SO congruence in any domain. Conclusion: In research on participation after TBI, proxy report may be an acceptable substitute for missing participant report on productivity and community activity outcomes. However, proxy responses should be used with caution for questions about social activities and degree of satisfaction with participation.
AB - Objective: To examine congruence between participant (P) and significant other (SO) reports on societal participation in 3 objective domains (economic, community, and social activities) and subjective satisfaction with participation at 1 year after traumatic brain injury (TBI). Participants: Ninety-seven persons with moderate to severe TBI and their SOs (27 spouses/partners, 47 parents, 23 other relatives/friends). Main Outcome Measure: Community Participation Indicators questionnaire, divided into Objective (Economic, Community, Social) and Subjective (Satisfaction) subscales. Design: Prospective correlational study. Results: P-SO congruence differed by domain of participation, with Economic and Community indicators showing higher agreement than Social and Satisfaction items. Congruence was not affected by P-SO relationship or whether the pair lived together. However, pairs who spent at least daily time together had significantly higher agreement on Satisfaction items than pairs who were together less often. Congruence was not predicted by SOs self-reported degree of awareness of Ps concerns. Severity of TBI, within the range represented in this sample, had no effect on P-SO congruence in any domain. Conclusion: In research on participation after TBI, proxy report may be an acceptable substitute for missing participant report on productivity and community activity outcomes. However, proxy responses should be used with caution for questions about social activities and degree of satisfaction with participation.
KW - participation
KW - proxy report
KW - traumatic brain injury
UR - http://www.scopus.com/inward/record.url?scp=77957588320&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=77957588320&partnerID=8YFLogxK
U2 - 10.1097/HTR.0b013e3181c7e60b
DO - 10.1097/HTR.0b013e3181c7e60b
M3 - Article
C2 - 20042981
AN - SCOPUS:77957588320
SN - 0885-9701
VL - 25
SP - 339
EP - 348
JO - Journal of Head Trauma Rehabilitation
JF - Journal of Head Trauma Rehabilitation
IS - 5
ER -