Quality of life in pediatric patients with cystic fibrosis

Jake Epker, Ann Matt Maddrey

Research output: Contribution to journalArticle

6 Citations (Scopus)

Abstract

In order to assess quality of life, we administered the Child Health Questionnaire (CHQ) to 43 pediatric patients diagnosed with cystic fibrosis (CF). Statistical analyses demonstrated that girls with CF perceive themselves to have better general health and report greater optimism regarding their future health than do boys with CF. Findings also revealed that age negatively correlated with general health perception, such that patients report worse general health as they become older. In addition, we administered the parent version of the CHQ to one of each patient's parents for the purpose of comparing their perceptions to those of their children. Results indicated that in each of the domains assessed parents perceive their children to experience greater impairment than that reported by patients. Finally, comparisons of parents' perceptions of the quality of life (QOL) of their children with CF versus parents' perceptions of the QOL of their children who have other chronic illness revealed variable patterns of impairment.

Original languageEnglish (US)
Pages (from-to)215-222
Number of pages8
JournalInternational Journal of Rehabilitation and Health
Volume4
Issue number4
StatePublished - 1998

Fingerprint

Cystic Fibrosis
Parents
Quality of Life
Pediatrics
Health
Chronic Disease
Child Health
Surveys and Questionnaires

Keywords

  • Child Health Questionnaire (CHQ)
  • Cystic fibrosis (CF)
  • Quality of life (QOL)

ASJC Scopus subject areas

  • Rehabilitation

Cite this

Quality of life in pediatric patients with cystic fibrosis. / Epker, Jake; Maddrey, Ann Matt.

In: International Journal of Rehabilitation and Health, Vol. 4, No. 4, 1998, p. 215-222.

Research output: Contribution to journalArticle

Epker, Jake ; Maddrey, Ann Matt. / Quality of life in pediatric patients with cystic fibrosis. In: International Journal of Rehabilitation and Health. 1998 ; Vol. 4, No. 4. pp. 215-222.
@article{6953b62c9343477190186c876295799b,
title = "Quality of life in pediatric patients with cystic fibrosis",
abstract = "In order to assess quality of life, we administered the Child Health Questionnaire (CHQ) to 43 pediatric patients diagnosed with cystic fibrosis (CF). Statistical analyses demonstrated that girls with CF perceive themselves to have better general health and report greater optimism regarding their future health than do boys with CF. Findings also revealed that age negatively correlated with general health perception, such that patients report worse general health as they become older. In addition, we administered the parent version of the CHQ to one of each patient's parents for the purpose of comparing their perceptions to those of their children. Results indicated that in each of the domains assessed parents perceive their children to experience greater impairment than that reported by patients. Finally, comparisons of parents' perceptions of the quality of life (QOL) of their children with CF versus parents' perceptions of the QOL of their children who have other chronic illness revealed variable patterns of impairment.",
keywords = "Child Health Questionnaire (CHQ), Cystic fibrosis (CF), Quality of life (QOL)",
author = "Jake Epker and Maddrey, {Ann Matt}",
year = "1998",
language = "English (US)",
volume = "4",
pages = "215--222",
journal = "International Journal of Rehabilitation and Health",
issn = "1068-9591",
publisher = "Kluwer/Plenum Publishers",
number = "4",

}

TY - JOUR

T1 - Quality of life in pediatric patients with cystic fibrosis

AU - Epker, Jake

AU - Maddrey, Ann Matt

PY - 1998

Y1 - 1998

N2 - In order to assess quality of life, we administered the Child Health Questionnaire (CHQ) to 43 pediatric patients diagnosed with cystic fibrosis (CF). Statistical analyses demonstrated that girls with CF perceive themselves to have better general health and report greater optimism regarding their future health than do boys with CF. Findings also revealed that age negatively correlated with general health perception, such that patients report worse general health as they become older. In addition, we administered the parent version of the CHQ to one of each patient's parents for the purpose of comparing their perceptions to those of their children. Results indicated that in each of the domains assessed parents perceive their children to experience greater impairment than that reported by patients. Finally, comparisons of parents' perceptions of the quality of life (QOL) of their children with CF versus parents' perceptions of the QOL of their children who have other chronic illness revealed variable patterns of impairment.

AB - In order to assess quality of life, we administered the Child Health Questionnaire (CHQ) to 43 pediatric patients diagnosed with cystic fibrosis (CF). Statistical analyses demonstrated that girls with CF perceive themselves to have better general health and report greater optimism regarding their future health than do boys with CF. Findings also revealed that age negatively correlated with general health perception, such that patients report worse general health as they become older. In addition, we administered the parent version of the CHQ to one of each patient's parents for the purpose of comparing their perceptions to those of their children. Results indicated that in each of the domains assessed parents perceive their children to experience greater impairment than that reported by patients. Finally, comparisons of parents' perceptions of the quality of life (QOL) of their children with CF versus parents' perceptions of the QOL of their children who have other chronic illness revealed variable patterns of impairment.

KW - Child Health Questionnaire (CHQ)

KW - Cystic fibrosis (CF)

KW - Quality of life (QOL)

UR - http://www.scopus.com/inward/record.url?scp=0032231778&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=0032231778&partnerID=8YFLogxK

M3 - Article

AN - SCOPUS:0032231778

VL - 4

SP - 215

EP - 222

JO - International Journal of Rehabilitation and Health

JF - International Journal of Rehabilitation and Health

SN - 1068-9591

IS - 4

ER -