Rapid-cycle implementation of a multi-organization registry for heart failure with preserved ejection fraction using health information exchange standards

Ambarish Pandey, James MacNamara, Satyam Sarma, Ferdinand Velasco, Vaishnavi Kannan, John Willard, Cheryl Skinner, Tony Keller, Mujeeb Basit, Benjamin Levine, Duwayne Willett

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

Constructing multi-site specialty registries typically proves time-consuming. Electronic health record (EHR) data collected during clinical care affords a pragmatic approach to accelerating registry implementation. Heart failure with preserved ejection fraction (HFpEF) is an increasingly common and morbid condition. Building a multi-site registry for HFpEF proved feasible using EHR data coded in standard terminologies (SNOMED CT, LOINC) and shared via Health Information Exchanges.

Original languageEnglish (US)
Title of host publicationMEDINFO 2019
Subtitle of host publicationHealth and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics
EditorsBrigitte Seroussi, Lucila Ohno-Machado, Lucila Ohno-Machado, Brigitte Seroussi
PublisherIOS Press
Pages1560-1561
Number of pages2
ISBN (Electronic)9781643680026
DOIs
StatePublished - Aug 21 2019
Event17th World Congress on Medical and Health Informatics, MEDINFO 2019 - Lyon, France
Duration: Aug 25 2019Aug 30 2019

Publication series

NameStudies in Health Technology and Informatics
Volume264
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Conference

Conference17th World Congress on Medical and Health Informatics, MEDINFO 2019
CountryFrance
CityLyon
Period8/25/198/30/19

Keywords

  • Diastolic
  • Health Information Exchange
  • Heart Failure
  • Registries

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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  • Cite this

    Pandey, A., MacNamara, J., Sarma, S., Velasco, F., Kannan, V., Willard, J., Skinner, C., Keller, T., Basit, M., Levine, B., & Willett, D. (2019). Rapid-cycle implementation of a multi-organization registry for heart failure with preserved ejection fraction using health information exchange standards. In B. Seroussi, L. Ohno-Machado, L. Ohno-Machado, & B. Seroussi (Eds.), MEDINFO 2019: Health and Wellbeing e-Networks for All - Proceedings of the 17th World Congress on Medical and Health Informatics (pp. 1560-1561). (Studies in Health Technology and Informatics; Vol. 264). IOS Press. https://doi.org/10.3233/SHTI190534