The children speak: An examination of the quality of life of pediatric cochlear implant users

Betty Loy; Andrea D. Warner-Czyz; Liyue Tong; Emily A. Tobey; Peter S. Roland

doi:10.1016/j.otohns.2009.10.045

The children speak: An examination of the quality of life of pediatric cochlear implant users

Betty Loy, Andrea D. Warner-Czyz, Liyue Tong, Emily A. Tobey, Peter S. Roland

Otolaryngology - Head And Neck Surgery

Research output: Contribution to journal › Article › peer-review

90 Scopus citations

Abstract

Objective: To examine the results of health-related quality-of-life questionnaire scores from profoundly deaf children fitted with at least one cochlear implant (CI) and to compare their responses with those of normal-hearing mates of similar age and their parents. Study Design: Cross-sectional study utilizing a generic quality-of-life questionnaire designed to be completed by both parents and children independently of each other. Setting: Questionnaires completed at various summer camps designed for children with CIs in Texas and Colorado. Subjects and Methods: Eighty-eight families from 16 states were divided into two subgroups by age of cochlear implantation: an eight- to 11-year-old group and a 12- to 16-year-old group. The KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents was distributed, and CI participants completed the questionnaire independently of their participating family member. Results: CI users in both age groups scored similarly to their normal-hearing peers and their parents. Younger CI users scored their family domain lower compared with their normal-hearing peers. Teen CI users scored the school domain lower compared with their parents. Among CI participants, earlier implantation and longer CI use resulted in higher quality-of-life scores. Conclusion: Children with CIs experience quality of life similar to that of normal-hearing peers. Parents are reliable reporters on the status of their child's overall quality of life.

Original language	English (US)
Pages (from-to)	247-253
Number of pages	7
Journal	Otolaryngology - Head and Neck Surgery
Volume	142
Issue number	2
DOIs	https://doi.org/10.1016/j.otohns.2009.10.045
State	Published - Feb 2010

ASJC Scopus subject areas

Surgery
Otorhinolaryngology

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10.1016/j.otohns.2009.10.045

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@article{e683508d317841f9ab721fe55aacd90a,

title = "The children speak: An examination of the quality of life of pediatric cochlear implant users",

abstract = "Objective: To examine the results of health-related quality-of-life questionnaire scores from profoundly deaf children fitted with at least one cochlear implant (CI) and to compare their responses with those of normal-hearing mates of similar age and their parents. Study Design: Cross-sectional study utilizing a generic quality-of-life questionnaire designed to be completed by both parents and children independently of each other. Setting: Questionnaires completed at various summer camps designed for children with CIs in Texas and Colorado. Subjects and Methods: Eighty-eight families from 16 states were divided into two subgroups by age of cochlear implantation: an eight- to 11-year-old group and a 12- to 16-year-old group. The KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents was distributed, and CI participants completed the questionnaire independently of their participating family member. Results: CI users in both age groups scored similarly to their normal-hearing peers and their parents. Younger CI users scored their family domain lower compared with their normal-hearing peers. Teen CI users scored the school domain lower compared with their parents. Among CI participants, earlier implantation and longer CI use resulted in higher quality-of-life scores. Conclusion: Children with CIs experience quality of life similar to that of normal-hearing peers. Parents are reliable reporters on the status of their child's overall quality of life.",

author = "Betty Loy and Warner-Czyz, {Andrea D.} and Liyue Tong and Tobey, {Emily A.} and Roland, {Peter S.}",

note = "Funding Information: Sponsorships: Partial funding provided by Med-El Corporation (funding for travel to and from data collection sites) and NIH grant number 1 UL1 RR024982-01 titled “North and Central Texas Clinical and Translational Science Initiative” (Milton Packer, MD, PI) from the National Center for Research Resources, a component of the NIH, and NIH Roadmap for Medical Research (Clinical Scholarship program for new researchers). Neither sponsor had a role in creating the research project, collecting or interpreting data, or writing or editing this manuscript. Funding Information: Competing interests: Betty Loy , Med-El: travel and partial salary support paid in 2008 (<$9000); Andrea Warner-Czyz , Clinical Sciences Scholar with funding from NIH grant number 1 UL1 RR024982-01: provided part of salary; Peter Roland , Med-El: corporation advisory board member. ",

year = "2010",

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doi = "10.1016/j.otohns.2009.10.045",

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T2 - An examination of the quality of life of pediatric cochlear implant users

AU - Loy, Betty

AU - Warner-Czyz, Andrea D.

AU - Tong, Liyue

AU - Tobey, Emily A.

AU - Roland, Peter S.

N1 - Funding Information: Sponsorships: Partial funding provided by Med-El Corporation (funding for travel to and from data collection sites) and NIH grant number 1 UL1 RR024982-01 titled “North and Central Texas Clinical and Translational Science Initiative” (Milton Packer, MD, PI) from the National Center for Research Resources, a component of the NIH, and NIH Roadmap for Medical Research (Clinical Scholarship program for new researchers). Neither sponsor had a role in creating the research project, collecting or interpreting data, or writing or editing this manuscript. Funding Information: Competing interests: Betty Loy , Med-El: travel and partial salary support paid in 2008 (<$9000); Andrea Warner-Czyz , Clinical Sciences Scholar with funding from NIH grant number 1 UL1 RR024982-01: provided part of salary; Peter Roland , Med-El: corporation advisory board member.

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N2 - Objective: To examine the results of health-related quality-of-life questionnaire scores from profoundly deaf children fitted with at least one cochlear implant (CI) and to compare their responses with those of normal-hearing mates of similar age and their parents. Study Design: Cross-sectional study utilizing a generic quality-of-life questionnaire designed to be completed by both parents and children independently of each other. Setting: Questionnaires completed at various summer camps designed for children with CIs in Texas and Colorado. Subjects and Methods: Eighty-eight families from 16 states were divided into two subgroups by age of cochlear implantation: an eight- to 11-year-old group and a 12- to 16-year-old group. The KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents was distributed, and CI participants completed the questionnaire independently of their participating family member. Results: CI users in both age groups scored similarly to their normal-hearing peers and their parents. Younger CI users scored their family domain lower compared with their normal-hearing peers. Teen CI users scored the school domain lower compared with their parents. Among CI participants, earlier implantation and longer CI use resulted in higher quality-of-life scores. Conclusion: Children with CIs experience quality of life similar to that of normal-hearing peers. Parents are reliable reporters on the status of their child's overall quality of life.

AB - Objective: To examine the results of health-related quality-of-life questionnaire scores from profoundly deaf children fitted with at least one cochlear implant (CI) and to compare their responses with those of normal-hearing mates of similar age and their parents. Study Design: Cross-sectional study utilizing a generic quality-of-life questionnaire designed to be completed by both parents and children independently of each other. Setting: Questionnaires completed at various summer camps designed for children with CIs in Texas and Colorado. Subjects and Methods: Eighty-eight families from 16 states were divided into two subgroups by age of cochlear implantation: an eight- to 11-year-old group and a 12- to 16-year-old group. The KINDL-R Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents was distributed, and CI participants completed the questionnaire independently of their participating family member. Results: CI users in both age groups scored similarly to their normal-hearing peers and their parents. Younger CI users scored their family domain lower compared with their normal-hearing peers. Teen CI users scored the school domain lower compared with their parents. Among CI participants, earlier implantation and longer CI use resulted in higher quality-of-life scores. Conclusion: Children with CIs experience quality of life similar to that of normal-hearing peers. Parents are reliable reporters on the status of their child's overall quality of life.

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The children speak: An examination of the quality of life of pediatric cochlear implant users

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