The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

Angela Lorts; Lauren Smyth; Robert J. Gajarski; Christina J. VanderPluym; Mary Mehegan; Chet R. Villa; Jenna M. Murray; Robert A. Niebler; Christopher S. Almond; Philip Thrush; Matthew J. O'Connor; Jennifer Conway; David L. Sutcliffe; Jodi E. Lantz; Farhan Zafar; David L.S. Morales; David M. Peng; David N. Rosenthal

doi:10.1097/MAT.0000000000001133

The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

Angela Lorts, Lauren Smyth, Robert J. Gajarski, Christina J. VanderPluym, Mary Mehegan, Chet R. Villa, Jenna M. Murray, Robert A. Niebler, Christopher S. Almond, Philip Thrush, Matthew J. O'Connor, Jennifer Conway, David L. Sutcliffe, Jodi E. Lantz, Farhan Zafar, David L.S. Morales, David M. Peng, David N. Rosenthal

Research output: Contribution to journal › Article › peer-review

52 Scopus citations

Abstract

Improving the outcomes of pediatric patients with congenital heart disease with end-stage heart failure depends on the collaboration of all stakeholders; this includes providers, patients and families, and industry representatives. Because of the rarity of this condition and the heterogeneity of heart failure etiologies that occur at pediatric centers, learnings must be shared between institutions and all disciplines to move the field forward. To foster collaboration, excel discovery, and bring data to the bedside, a new, collaborative quality improvement science network - ACTION (Advanced Cardiac Therapies Improving Outcomes Network) - was developed to meet the needs of the field. Existing gaps in care and the methods of improvement that will be used are described, along with the mission and vision, utility of real-world data for regulatory purposes, and the organizational structure of ACTION is described.

Original language	English (US)
Pages (from-to)	441-446
Number of pages	6
Journal	ASAIO Journal
Volume	66
Issue number	4
DOIs	https://doi.org/10.1097/MAT.0000000000001133
State	Published - Apr 1 2020

Keywords

collaborative
heart failure
learning network
quality improvement
ventricular assist device

ASJC Scopus subject areas

Bioengineering
Biophysics
Biomedical Engineering
Biomaterials

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10.1097/MAT.0000000000001133

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Lorts, A., Smyth, L., Gajarski, R. J., VanderPluym, C. J., Mehegan, M., Villa, C. R., Murray, J. M., Niebler, R. A., Almond, C. S., Thrush, P., O'Connor, M. J., Conway, J., Sutcliffe, D. L., Lantz, J. E., Zafar, F., Morales, D. L. S., Peng, D. M., & Rosenthal, D. N. (2020). The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative. ASAIO Journal, 66(4), 441-446. https://doi.org/10.1097/MAT.0000000000001133

Lorts, A, Smyth, L, Gajarski, RJ, VanderPluym, CJ, Mehegan, M, Villa, CR, Murray, JM, Niebler, RA, Almond, CS, Thrush, P, O'Connor, MJ, Conway, J, Sutcliffe, DL, Lantz, JE, Zafar, F, Morales, DLS, Peng, DM & Rosenthal, DN 2020, 'The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative', ASAIO Journal, vol. 66, no. 4, pp. 441-446. https://doi.org/10.1097/MAT.0000000000001133

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abstract = "Improving the outcomes of pediatric patients with congenital heart disease with end-stage heart failure depends on the collaboration of all stakeholders; this includes providers, patients and families, and industry representatives. Because of the rarity of this condition and the heterogeneity of heart failure etiologies that occur at pediatric centers, learnings must be shared between institutions and all disciplines to move the field forward. To foster collaboration, excel discovery, and bring data to the bedside, a new, collaborative quality improvement science network - ACTION (Advanced Cardiac Therapies Improving Outcomes Network) - was developed to meet the needs of the field. Existing gaps in care and the methods of improvement that will be used are described, along with the mission and vision, utility of real-world data for regulatory purposes, and the organizational structure of ACTION is described.",

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The Creation of a Pediatric Health Care Learning Network: The ACTION Quality Improvement Collaborative

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Keywords

ASJC Scopus subject areas

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