Introduction In 1994, the U.S. Department of Health and Human Services mandated sufficient inclusion of racial and ethnic minorities in all federally funded research. This mandate requires researchers to monitor study samples for research participation and differential survey nonresponse. This study illustrates methods to assess differential survey nonresponse when population race data are incomplete, which is often the case when studies are conducted among members of health plans. Methods We collected data as part of the PRISM (Personally Relevant Information about Screening Mammography) study, a trial funded by the National Institutes of Health to increase rates of annual mammography adherence. We used two methods to estimate racial distribution of the PRISM study population. The first method, called E-Tech, estimated race of the sample frame by using individuals' names and zip codes. In the second method, we conducted interviews with a subsample of PRISM study refusals. We validated both estimation methods through comparisons with self-reported race. We used race information generated by E-Tech, interviewer estimates, and self-report to assess differential nonresponse in the PRISM study. Results The E-Tech method had moderate sensitivity (48%) in estimating race of black participants but higher specificity (97%) and positive predictive value (71%). The interviewer-estimation method had high sensitivity (100%), high specificity (95%), and moderate positive predictive value (80%). Black women were less likely than white women to be reached for study participation. Conclusion There was slight differential nonresponse by race in the PRISM study. Techniques described here may be useful for assessing differential nonresponse in samples with incomplete data on race.
|Original language||English (US)|
|Journal||Preventing Chronic Disease|
|State||Published - Jan 1 2007|
ASJC Scopus subject areas
- Health Policy
- Public Health, Environmental and Occupational Health