YouTube as a source of information on dialysis: A content analysis

Neetika Garg, Anand Venkatraman, Ambarish Pandey, Nilay Kumar

Research output: Contribution to journalArticle

43 Citations (Scopus)

Abstract

Aim End-stage renal disease is a prevalent and growing health problem worldwide. With increasing Internet use, video-sharing websites could potentially serve as a powerful platform for dissemination of information on dialysis. We conducted a cross-sectional study to assess the accuracy, content and viewership of YouTube videos on dialysis. Methods YouTube videos identified using the search term 'dialysis' were classified independently by two physicians as 'useful,' 'misleading' and 'patient's personal experiences'. Five-point ordinal scales were used to grade reliability and quality. Information regarding source of upload, content in seven pre-defined domains and various viewer interaction metrics was collected. Results Of the 115 videos with cumulative duration of 16.2 h and viewership of approximately 2.7 million, 67 (58.3%) were useful, 19 (16.5%) were misleading and 29 (25.2%) represented patient's personal experiences; kappa statistic for inter-observer agreement was 0.985. Useful videos were the most comprehensive and had the highest reliability and quality scores. However, viewership per day was the lowest for useful videos at a median of 3 (interquartile range (IQR) 1-17), as compared with 11 (IQR 4-43) for misleading videos and 14 (IQR 5-30) for patient experiences (P = 0.013). All misleading videos were uploaded by individual users with unknown credentials. Of these, 68.4% promoted alternative therapies such as herbs and osmotherapy; 47.4% included advertisements for related services. Conclusions Viewers favoured misleading videos and patient narratives over scientifically accurate information. Authoritative sources should use popular social media websites to provide relevant and easy-to-understand information on dialysis; including patient stories can make this material more engaging. Summary at a Glance The Internet has provided easy access to health information. This paper evaluates the quality of information about dialysis from one popular website and the results are informative in many ways.

Original languageEnglish (US)
Pages (from-to)315-320
Number of pages6
JournalNephrology
Volume20
Issue number5
DOIs
StatePublished - May 1 2015
Externally publishedYes

Fingerprint

Dialysis
Internet
Social Media
Access to Information
Information Dissemination
Complementary Therapies
Chronic Kidney Failure
Cross-Sectional Studies
Physicians
Health

Keywords

  • dialysis
  • education
  • Internet
  • social media
  • YouTube

ASJC Scopus subject areas

  • Nephrology

Cite this

YouTube as a source of information on dialysis : A content analysis. / Garg, Neetika; Venkatraman, Anand; Pandey, Ambarish; Kumar, Nilay.

In: Nephrology, Vol. 20, No. 5, 01.05.2015, p. 315-320.

Research output: Contribution to journalArticle

Garg, Neetika ; Venkatraman, Anand ; Pandey, Ambarish ; Kumar, Nilay. / YouTube as a source of information on dialysis : A content analysis. In: Nephrology. 2015 ; Vol. 20, No. 5. pp. 315-320.
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abstract = "Aim End-stage renal disease is a prevalent and growing health problem worldwide. With increasing Internet use, video-sharing websites could potentially serve as a powerful platform for dissemination of information on dialysis. We conducted a cross-sectional study to assess the accuracy, content and viewership of YouTube videos on dialysis. Methods YouTube videos identified using the search term 'dialysis' were classified independently by two physicians as 'useful,' 'misleading' and 'patient's personal experiences'. Five-point ordinal scales were used to grade reliability and quality. Information regarding source of upload, content in seven pre-defined domains and various viewer interaction metrics was collected. Results Of the 115 videos with cumulative duration of 16.2 h and viewership of approximately 2.7 million, 67 (58.3{\%}) were useful, 19 (16.5{\%}) were misleading and 29 (25.2{\%}) represented patient's personal experiences; kappa statistic for inter-observer agreement was 0.985. Useful videos were the most comprehensive and had the highest reliability and quality scores. However, viewership per day was the lowest for useful videos at a median of 3 (interquartile range (IQR) 1-17), as compared with 11 (IQR 4-43) for misleading videos and 14 (IQR 5-30) for patient experiences (P = 0.013). All misleading videos were uploaded by individual users with unknown credentials. Of these, 68.4{\%} promoted alternative therapies such as herbs and osmotherapy; 47.4{\%} included advertisements for related services. Conclusions Viewers favoured misleading videos and patient narratives over scientifically accurate information. Authoritative sources should use popular social media websites to provide relevant and easy-to-understand information on dialysis; including patient stories can make this material more engaging. Summary at a Glance The Internet has provided easy access to health information. This paper evaluates the quality of information about dialysis from one popular website and the results are informative in many ways.",
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