Activation of persons living with HIV for treatment, the great study Health behavior, health promotion and society

Kevin Fiscella, Michele Boyd, Julian Brown, Jennifer Carroll, Andrea Cassells, Roberto Corales, Wendi Cross, Nayef El'daher, Subrina Farah, Steven Fine, Richard Fowler, Ashley Hann, Amneris Luque, Jennifer Rodriquez, Mechelle Sanders, Jonathan Tobin

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Background: Patient empowerment represents a potent tool for addressing racial, ethnic and socioeconomic disparities in health care, particularly for chronic conditions such as HIV infection that require active patient engagement. This multimodal intervention, developed in concert with HIV patients and clinicians, aims to provide HIV patients with the knowledge, skills, attitudes and tools to become more activated patients. Methods/Design: Randomized controlled trial of a multimodal intervention designed to activate persons living with HIV. The intervention includes four components: 1) use of a web-enabled hand-held device (Apple iPod Touch) loaded with a Personal Health Record (ePHR) customized for HIV patients; 2) six 90-minute group-based training sessions in use of the device, internet and the ePHR; 3) a pre-visit coaching session; and 4) clinician education regarding how they can support activated patients. Outcome measures include pre- post changes in patient activation measure score (primary outcome), eHealth literacy, patient involvement in decision-making and care, medication adherence, preventive care, and HIV Viral Load. Discussion: We hypothesize that participants receiving the intervention will show greater improvement in empowerment and the intervention will reduce disparities in study outcomes. Disparities in these measures will be smaller than those in the usual care group. Findings have implications for activating persons living with HIV and for other marginalized groups living with chronic illness. Trial registration: ClinicalTrials.gov Identifier: NCT02165735, 6/13/2014.

Original languageEnglish (US)
Article number1056
JournalBMC Public Health
Volume15
Issue number1
DOIs
StatePublished - Oct 16 2015

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Health Behavior
Health Promotion
Patient Participation
HIV
Therapeutics
Healthcare Disparities
Outcome Assessment (Health Care)
Personal Health Records
Equipment and Supplies
Preventive Medicine
Medication Adherence
Telemedicine
Touch
Malus
Viral Load
Internet
HIV Infections
Decision Making
Chronic Disease
Randomized Controlled Trials

Keywords

  • Health information technology
  • HIV
  • Patient activation

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Fiscella, K., Boyd, M., Brown, J., Carroll, J., Cassells, A., Corales, R., ... Tobin, J. (2015). Activation of persons living with HIV for treatment, the great study Health behavior, health promotion and society. BMC Public Health, 15(1), [1056]. https://doi.org/10.1186/s12889-015-2382-1

Activation of persons living with HIV for treatment, the great study Health behavior, health promotion and society. / Fiscella, Kevin; Boyd, Michele; Brown, Julian; Carroll, Jennifer; Cassells, Andrea; Corales, Roberto; Cross, Wendi; El'daher, Nayef; Farah, Subrina; Fine, Steven; Fowler, Richard; Hann, Ashley; Luque, Amneris; Rodriquez, Jennifer; Sanders, Mechelle; Tobin, Jonathan.

In: BMC Public Health, Vol. 15, No. 1, 1056, 16.10.2015.

Research output: Contribution to journalArticle

Fiscella, K, Boyd, M, Brown, J, Carroll, J, Cassells, A, Corales, R, Cross, W, El'daher, N, Farah, S, Fine, S, Fowler, R, Hann, A, Luque, A, Rodriquez, J, Sanders, M & Tobin, J 2015, 'Activation of persons living with HIV for treatment, the great study Health behavior, health promotion and society', BMC Public Health, vol. 15, no. 1, 1056. https://doi.org/10.1186/s12889-015-2382-1
Fiscella, Kevin ; Boyd, Michele ; Brown, Julian ; Carroll, Jennifer ; Cassells, Andrea ; Corales, Roberto ; Cross, Wendi ; El'daher, Nayef ; Farah, Subrina ; Fine, Steven ; Fowler, Richard ; Hann, Ashley ; Luque, Amneris ; Rodriquez, Jennifer ; Sanders, Mechelle ; Tobin, Jonathan. / Activation of persons living with HIV for treatment, the great study Health behavior, health promotion and society. In: BMC Public Health. 2015 ; Vol. 15, No. 1.
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