Abstract
The National Institutes of Health has established the PhenX Toolkit as a web-based resource containing consensus measures freely available to the research community. The National Institute of Mental Health (NIMH) has introduced the Mental Health Research Core Collection as part of the PhenX Toolkit and recently convened the PhenX Early Psychosis Working Group to generate the PhenX Early Psychosis Specialty Collection. The Working Group consisted of two complementary panels for clinical and translational research. We review the process, deliberations, and products of the translational research panel. The Early Psychosis Specialty Collection rationale for measure selection as well as additional information and protocols for obtaining each measure are available on the PhenX website (https://www.phenxtoolkit.org). The NIMH strongly encourages investigators to use instruments from the PhenX Mental Health Research Collections in NIMH-funded studies and discourages use of alternative measures to collect similar data without justification. We also discuss some of the potential advances that can be achieved by collecting common data elements across large-scale longitudinal studies of early psychosis.
| Original language | English (US) |
|---|---|
| Journal | Biological Psychiatry: Cognitive Neuroscience and Neuroimaging |
| DOIs | |
| State | Accepted/In press - Jan 1 2019 |
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Keywords
- Cognition
- Data element
- Early psychosis
- Neuroimaging
- PhenX
- Schizophrenia
ASJC Scopus subject areas
- Radiology Nuclear Medicine and imaging
- Cognitive Neuroscience
- Clinical Neurology
- Biological Psychiatry
Cite this
Common Data Elements for National Institute of Mental Health–Funded Translational Early Psychosis Research. / Öngür, Dost; Carter, Cameron S.; Gur, Raquel E.; Perkins, Diana; Sawa, Akira; Seidman, Larry J.; Tamminga, Carol; Huggins, Wayne; Hamilton, Carol.
In: Biological Psychiatry: Cognitive Neuroscience and Neuroimaging, 01.01.2019.Research output: Contribution to journal › Review article
}
TY - JOUR
T1 - Common Data Elements for National Institute of Mental Health–Funded Translational Early Psychosis Research
AU - Öngür, Dost
AU - Carter, Cameron S.
AU - Gur, Raquel E.
AU - Perkins, Diana
AU - Sawa, Akira
AU - Seidman, Larry J.
AU - Tamminga, Carol
AU - Huggins, Wayne
AU - Hamilton, Carol
PY - 2019/1/1
Y1 - 2019/1/1
N2 - The National Institutes of Health has established the PhenX Toolkit as a web-based resource containing consensus measures freely available to the research community. The National Institute of Mental Health (NIMH) has introduced the Mental Health Research Core Collection as part of the PhenX Toolkit and recently convened the PhenX Early Psychosis Working Group to generate the PhenX Early Psychosis Specialty Collection. The Working Group consisted of two complementary panels for clinical and translational research. We review the process, deliberations, and products of the translational research panel. The Early Psychosis Specialty Collection rationale for measure selection as well as additional information and protocols for obtaining each measure are available on the PhenX website (https://www.phenxtoolkit.org). The NIMH strongly encourages investigators to use instruments from the PhenX Mental Health Research Collections in NIMH-funded studies and discourages use of alternative measures to collect similar data without justification. We also discuss some of the potential advances that can be achieved by collecting common data elements across large-scale longitudinal studies of early psychosis.
AB - The National Institutes of Health has established the PhenX Toolkit as a web-based resource containing consensus measures freely available to the research community. The National Institute of Mental Health (NIMH) has introduced the Mental Health Research Core Collection as part of the PhenX Toolkit and recently convened the PhenX Early Psychosis Working Group to generate the PhenX Early Psychosis Specialty Collection. The Working Group consisted of two complementary panels for clinical and translational research. We review the process, deliberations, and products of the translational research panel. The Early Psychosis Specialty Collection rationale for measure selection as well as additional information and protocols for obtaining each measure are available on the PhenX website (https://www.phenxtoolkit.org). The NIMH strongly encourages investigators to use instruments from the PhenX Mental Health Research Collections in NIMH-funded studies and discourages use of alternative measures to collect similar data without justification. We also discuss some of the potential advances that can be achieved by collecting common data elements across large-scale longitudinal studies of early psychosis.
KW - Cognition
KW - Data element
KW - Early psychosis
KW - Neuroimaging
KW - PhenX
KW - Schizophrenia
UR - http://www.scopus.com/inward/record.url?scp=85070768081&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85070768081&partnerID=8YFLogxK
U2 - 10.1016/j.bpsc.2019.06.009
DO - 10.1016/j.bpsc.2019.06.009
M3 - Review article
C2 - 31439493
AN - SCOPUS:85070768081
JO - Biological Psychiatry: Cognitive Neuroscience and Neuroimaging
JF - Biological Psychiatry: Cognitive Neuroscience and Neuroimaging
SN - 2451-9022
ER -