Comprehensive handbook for developing a bladder cancer cystectomy database

Yair Lotan, Gilad Amiel, Stephen A. Boorjian, Peter E. Clark, Michael Droller, Jeffrey R. Gingrich, Thomas J. Guzzo, Brant A. Inman, Ashish M. Kamat, Larry Karsh, Matthew E. Nielsen, Norm D. Smith, Shahrokh F. Shariat, Robert S. Svatek, Jennifer M. Taylor

Research output: Contribution to journalArticle

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Abstract

Objective: In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection. Methods: Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group. Results: Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements. Conclusions: Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.

Original languageEnglish (US)
Pages (from-to)812-826
Number of pages15
JournalUrologic Oncology: Seminars and Original Investigations
Volume31
Issue number6
DOIs
StatePublished - Aug 2013

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Keywords

  • Bladder cancer
  • Databases

ASJC Scopus subject areas

  • Oncology
  • Urology

Cite this

Lotan, Y., Amiel, G., Boorjian, S. A., Clark, P. E., Droller, M., Gingrich, J. R., Guzzo, T. J., Inman, B. A., Kamat, A. M., Karsh, L., Nielsen, M. E., Smith, N. D., Shariat, S. F., Svatek, R. S., & Taylor, J. M. (2013). Comprehensive handbook for developing a bladder cancer cystectomy database. Urologic Oncology: Seminars and Original Investigations, 31(6), 812-826. https://doi.org/10.1016/j.urolonc.2011.09.004