Longitudinal follow-up studies in the pediatric heart network

Lynn Mahony; Lynn A. Sleeper; Gail D. Pearson

doi:10.1007/978-1-4471-6587-3_33

Longitudinal follow-up studies in the pediatric heart network

Lynn Mahony, Lynn A. Sleeper, Gail D. Pearson

Research output: Chapter in Book/Report/Conference proceeding › Chapter

Abstract

To promote collaborative research leading to evidence-based treatment options for pediatric patients with congenital and acquired heart disease, the National Heart, Lung, and Blood Institute established the Pediatric Heart Network (PHN) in 2001. The infrastructure is now well-developed and capable of implementing complex, multicenter protocols efficiently and recruiting subjects effectively. In addition, we have developed mechanisms to retain subjects and have established several cohorts that we are following long-term. The purpose of this chapter is to describe the structure of the PHN and to review studies relevant to longitudinal patient outcome. The PHN is uniquely positioned to contribute to the body of knowledge regarding evidenced-based treatment approaches for pediatric patients with cardiovascular disease.

Original language	English (US)
Title of host publication	Pediatric and Congenital Cardiac Care: Volume 1: Outcomes Analysis
Publisher	Springer-Verlag London Ltd
Pages	435-444
Number of pages	10
ISBN (Print)	9781447165873, 9781447165866
DOIs	https://doi.org/10.1007/978-1-4471-6587-3_33
State	Published - Jan 1 2015

Keywords

Cardiomyopathy in children
Congenital heart disease
Congenital heart surgery
Outcomes
Pediatric clinical research
Randomized clinical trials
Single ventricle

ASJC Scopus subject areas

General Medicine

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10.1007/978-1-4471-6587-3_33

Cite this

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AB - To promote collaborative research leading to evidence-based treatment options for pediatric patients with congenital and acquired heart disease, the National Heart, Lung, and Blood Institute established the Pediatric Heart Network (PHN) in 2001. The infrastructure is now well-developed and capable of implementing complex, multicenter protocols efficiently and recruiting subjects effectively. In addition, we have developed mechanisms to retain subjects and have established several cohorts that we are following long-term. The purpose of this chapter is to describe the structure of the PHN and to review studies relevant to longitudinal patient outcome. The PHN is uniquely positioned to contribute to the body of knowledge regarding evidenced-based treatment approaches for pediatric patients with cardiovascular disease.

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KW - Single ventricle

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Longitudinal follow-up studies in the pediatric heart network

Abstract

Keywords

ASJC Scopus subject areas

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