Parent-provider-community partnerships: Optimizing outcomes for children with disabilities

Nancy A. Murphy, Paul S. Carbone, Richard C. Adams, Robert T. Burke, Sandra L. Friedman, Miriam A. Kalichman, Susan E. Levy, Gregory S. Liptak, Douglas McNeal, Kenneth W. Norwood, Renee M. Turchi, Susan E. Wiley

Research output: Contribution to journalArticle

46 Scopus citations

Abstract

Children with disabilities and their families have multifaceted medical, developmental, educational, and habilitative needs that are best addressed through strong partnerships among parents, providers, and communities. However, traditional health care systems are designed to address acute rather than chronic conditions. Children with disabilities require high-quality medical homes that provide care coordination and transitional care, and their families require social and financial supports. Integrated community systems of care that promote participation of all children are needed. The purpose of this clinical report is to explore the challenges of developing effective community-based systems of care and to offer suggestions to pediatricians and policy-makers regarding the development of partnerships among children with disabilities, their families, and health care and other providers to maximize health and well-being of these children and their families.

Original languageEnglish (US)
Pages (from-to)795-802
Number of pages8
JournalPediatrics
Volume128
Issue number4
DOIs
Publication statusPublished - Oct 1 2011

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Keywords

  • Children with special health care needs
  • Community
  • Disabilities
  • Medical home

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Arts and Humanities (miscellaneous)

Cite this

Murphy, N. A., Carbone, P. S., Adams, R. C., Burke, R. T., Friedman, S. L., Kalichman, M. A., ... Wiley, S. E. (2011). Parent-provider-community partnerships: Optimizing outcomes for children with disabilities. Pediatrics, 128(4), 795-802. https://doi.org/10.1542/peds.2011-1467