The difficulty of studying race-ethnic stroke rehabilitation disparities in a community

Lynda D. Lisabeth, Susan D. Horn, Nneka L. Ifejika, Emma Sais, Michael Fuentes, Xiaqing Jiang, Erin Case, Lewis B. Morgenstern

Research output: Contribution to journalArticle

Abstract

Objective: Minority populations have worse stroke outcomes compared with non-Hispanic whites (NHWs). One possible explanation for this disparity is differential allocation of stroke rehabilitation. We utilized a population-based stroke study to determine the feasibility of studying Mexican American-NHW differences in stroke rehabilitation in a population-based design including identification of community partners, development of standardized data collection instruments, and collection of pilot data. Methods: As part of the Brain Attack Surveillance in Corpus Christi project, we followed 48 patients for the first 90 days after stroke, and attempted to work with community partners to garner information on rehabilitation modalities used. With input from local occupational and physical therapists and speech language pathologists, we created data collection forms to capture rehabilitation activities and time spent on these activities and conducted a 3-month data collection pilot. Results: Of the 79 rehabilitation venues in the community, 63 (80%) agreed to participate. During the pilot, 545 data forms from 20 stroke patients were collected corresponding to ~18% of stroke patients. Forms were used by 13 partners during the pilot including 3 of 4 inpatient rehabilitation facilities, 4 of 13 skilled nursing facilities, 4 of 26 home health agencies, and 2 of 36 outpatient rehabilitation providers. Conclusions: Initial agreement from rehabilitation providers to participate in research was excellent, but completion of study related data collection forms was sub-optimal suggesting this approach is not feasible for a future population-based stroke rehabilitation study. Further methods to study post-stroke rehabilitation disparities in communities are needed.

Original languageEnglish (US)
Pages (from-to)393-396
Number of pages4
JournalTopics in Stroke Rehabilitation
Volume25
Issue number6
DOIs
StatePublished - Aug 18 2018
Externally publishedYes

Fingerprint

Rehabilitation
Stroke
Population
Home Care Agencies
Skilled Nursing Facilities
Social Planning
Physical Therapists
Stroke Rehabilitation
Inpatients
Outpatients
Language
Brain
Research

Keywords

  • ethnicity
  • outcomes
  • rehabilitation
  • Stroke

ASJC Scopus subject areas

  • Rehabilitation
  • Community and Home Care
  • Clinical Neurology

Cite this

The difficulty of studying race-ethnic stroke rehabilitation disparities in a community. / Lisabeth, Lynda D.; Horn, Susan D.; Ifejika, Nneka L.; Sais, Emma; Fuentes, Michael; Jiang, Xiaqing; Case, Erin; Morgenstern, Lewis B.

In: Topics in Stroke Rehabilitation, Vol. 25, No. 6, 18.08.2018, p. 393-396.

Research output: Contribution to journalArticle

Lisabeth, LD, Horn, SD, Ifejika, NL, Sais, E, Fuentes, M, Jiang, X, Case, E & Morgenstern, LB 2018, 'The difficulty of studying race-ethnic stroke rehabilitation disparities in a community', Topics in Stroke Rehabilitation, vol. 25, no. 6, pp. 393-396. https://doi.org/10.1080/10749357.2018.1481606
Lisabeth, Lynda D. ; Horn, Susan D. ; Ifejika, Nneka L. ; Sais, Emma ; Fuentes, Michael ; Jiang, Xiaqing ; Case, Erin ; Morgenstern, Lewis B. / The difficulty of studying race-ethnic stroke rehabilitation disparities in a community. In: Topics in Stroke Rehabilitation. 2018 ; Vol. 25, No. 6. pp. 393-396.
@article{72134a99244a4784a8b5065f5b6f8b86,
title = "The difficulty of studying race-ethnic stroke rehabilitation disparities in a community",
abstract = "Objective: Minority populations have worse stroke outcomes compared with non-Hispanic whites (NHWs). One possible explanation for this disparity is differential allocation of stroke rehabilitation. We utilized a population-based stroke study to determine the feasibility of studying Mexican American-NHW differences in stroke rehabilitation in a population-based design including identification of community partners, development of standardized data collection instruments, and collection of pilot data. Methods: As part of the Brain Attack Surveillance in Corpus Christi project, we followed 48 patients for the first 90 days after stroke, and attempted to work with community partners to garner information on rehabilitation modalities used. With input from local occupational and physical therapists and speech language pathologists, we created data collection forms to capture rehabilitation activities and time spent on these activities and conducted a 3-month data collection pilot. Results: Of the 79 rehabilitation venues in the community, 63 (80{\%}) agreed to participate. During the pilot, 545 data forms from 20 stroke patients were collected corresponding to ~18{\%} of stroke patients. Forms were used by 13 partners during the pilot including 3 of 4 inpatient rehabilitation facilities, 4 of 13 skilled nursing facilities, 4 of 26 home health agencies, and 2 of 36 outpatient rehabilitation providers. Conclusions: Initial agreement from rehabilitation providers to participate in research was excellent, but completion of study related data collection forms was sub-optimal suggesting this approach is not feasible for a future population-based stroke rehabilitation study. Further methods to study post-stroke rehabilitation disparities in communities are needed.",
keywords = "ethnicity, outcomes, rehabilitation, Stroke",
author = "Lisabeth, {Lynda D.} and Horn, {Susan D.} and Ifejika, {Nneka L.} and Emma Sais and Michael Fuentes and Xiaqing Jiang and Erin Case and Morgenstern, {Lewis B.}",
year = "2018",
month = "8",
day = "18",
doi = "10.1080/10749357.2018.1481606",
language = "English (US)",
volume = "25",
pages = "393--396",
journal = "Topics in Stroke Rehabilitation",
issn = "1074-9357",
publisher = "Thomas Land Publishers Inc.",
number = "6",

}

TY - JOUR

T1 - The difficulty of studying race-ethnic stroke rehabilitation disparities in a community

AU - Lisabeth, Lynda D.

AU - Horn, Susan D.

AU - Ifejika, Nneka L.

AU - Sais, Emma

AU - Fuentes, Michael

AU - Jiang, Xiaqing

AU - Case, Erin

AU - Morgenstern, Lewis B.

PY - 2018/8/18

Y1 - 2018/8/18

N2 - Objective: Minority populations have worse stroke outcomes compared with non-Hispanic whites (NHWs). One possible explanation for this disparity is differential allocation of stroke rehabilitation. We utilized a population-based stroke study to determine the feasibility of studying Mexican American-NHW differences in stroke rehabilitation in a population-based design including identification of community partners, development of standardized data collection instruments, and collection of pilot data. Methods: As part of the Brain Attack Surveillance in Corpus Christi project, we followed 48 patients for the first 90 days after stroke, and attempted to work with community partners to garner information on rehabilitation modalities used. With input from local occupational and physical therapists and speech language pathologists, we created data collection forms to capture rehabilitation activities and time spent on these activities and conducted a 3-month data collection pilot. Results: Of the 79 rehabilitation venues in the community, 63 (80%) agreed to participate. During the pilot, 545 data forms from 20 stroke patients were collected corresponding to ~18% of stroke patients. Forms were used by 13 partners during the pilot including 3 of 4 inpatient rehabilitation facilities, 4 of 13 skilled nursing facilities, 4 of 26 home health agencies, and 2 of 36 outpatient rehabilitation providers. Conclusions: Initial agreement from rehabilitation providers to participate in research was excellent, but completion of study related data collection forms was sub-optimal suggesting this approach is not feasible for a future population-based stroke rehabilitation study. Further methods to study post-stroke rehabilitation disparities in communities are needed.

AB - Objective: Minority populations have worse stroke outcomes compared with non-Hispanic whites (NHWs). One possible explanation for this disparity is differential allocation of stroke rehabilitation. We utilized a population-based stroke study to determine the feasibility of studying Mexican American-NHW differences in stroke rehabilitation in a population-based design including identification of community partners, development of standardized data collection instruments, and collection of pilot data. Methods: As part of the Brain Attack Surveillance in Corpus Christi project, we followed 48 patients for the first 90 days after stroke, and attempted to work with community partners to garner information on rehabilitation modalities used. With input from local occupational and physical therapists and speech language pathologists, we created data collection forms to capture rehabilitation activities and time spent on these activities and conducted a 3-month data collection pilot. Results: Of the 79 rehabilitation venues in the community, 63 (80%) agreed to participate. During the pilot, 545 data forms from 20 stroke patients were collected corresponding to ~18% of stroke patients. Forms were used by 13 partners during the pilot including 3 of 4 inpatient rehabilitation facilities, 4 of 13 skilled nursing facilities, 4 of 26 home health agencies, and 2 of 36 outpatient rehabilitation providers. Conclusions: Initial agreement from rehabilitation providers to participate in research was excellent, but completion of study related data collection forms was sub-optimal suggesting this approach is not feasible for a future population-based stroke rehabilitation study. Further methods to study post-stroke rehabilitation disparities in communities are needed.

KW - ethnicity

KW - outcomes

KW - rehabilitation

KW - Stroke

UR - http://www.scopus.com/inward/record.url?scp=85053340320&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85053340320&partnerID=8YFLogxK

U2 - 10.1080/10749357.2018.1481606

DO - 10.1080/10749357.2018.1481606

M3 - Article

C2 - 30187831

AN - SCOPUS:85053340320

VL - 25

SP - 393

EP - 396

JO - Topics in Stroke Rehabilitation

JF - Topics in Stroke Rehabilitation

SN - 1074-9357

IS - 6

ER -