Using the Spina Bifida Life Course Model in Clinical Practice: An Interdisciplinary Approach

Brad E. Dicianno, Andrea D. Fairman, Shannon B. Juengst, Patricia G. Braun, T. Andrew Zabel

Research output: Contribution to journalReview article

Abstract

The Life Course Model for patients, families, caregivers, teachers, and clinicians was developed with support by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, for individuals with spina bifida. The Life Course Model facilitates a developmental approach to assessment and intervention along life's trajectory. This Life Course Model provides information about key developmental milestones for particular age groups, validated assessments that can be performed by clinicians or teachers to determine if milestones have been reached, useful suggestions for intervening in creative ways at each step, and evidence-based references. In this article, the authors introduce the viewpoints of several key clinicians who are involved in the care of individuals with spina bifida and how the Life Course Model can assist them, their patients, and their families in the process of assessment, intervention, collaboration with other clinicians, and follow-up. A case study is used to demonstrate the experience of comprehensive and collaborative management in transitioning a child and his family from infancy to adulthood.

Original languageEnglish (US)
Pages (from-to)945-957
Number of pages13
JournalPediatric Clinics of North America
Volume57
Issue number4
DOIs
StatePublished - Aug 1 2010

Fingerprint

Spinal Dysraphism
Developmental Disabilities
Process Assessment (Health Care)
Centers for Disease Control and Prevention (U.S.)
Caregivers
Age Groups

Keywords

  • Development
  • Milestones
  • Spina bifida
  • Transition

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Medicine(all)

Cite this

Using the Spina Bifida Life Course Model in Clinical Practice : An Interdisciplinary Approach. / Dicianno, Brad E.; Fairman, Andrea D.; Juengst, Shannon B.; Braun, Patricia G.; Zabel, T. Andrew.

In: Pediatric Clinics of North America, Vol. 57, No. 4, 01.08.2010, p. 945-957.

Research output: Contribution to journalReview article

Dicianno, Brad E. ; Fairman, Andrea D. ; Juengst, Shannon B. ; Braun, Patricia G. ; Zabel, T. Andrew. / Using the Spina Bifida Life Course Model in Clinical Practice : An Interdisciplinary Approach. In: Pediatric Clinics of North America. 2010 ; Vol. 57, No. 4. pp. 945-957.
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