Working without a net: Leukemia and lymphoma survivors' perspectives on care delivery at end-of-treatment and beyond

Carla Parry, Elizabeth Morningstar, Jeffery Kendall, Eric A. Coleman

Research output: Contribution to journalArticle

32 Citations (Scopus)

Abstract

This study explored survivors' perspectives on care delivery and supportive care needs during reentry. Fifty-one individual interviews were conducted with adult leukemia and lymphoma survivors, 3 to 48 months from treatment cessation. Survivors reported poor continuity of care across the patient-survivor transition, difficulty finding appropriate information/services, lack of preparation, lack of support for survivorship issues, and inadequate or poorly timed follow-up as factors contributing to adjustment difficulties at end of treatment and beyond. Improved care coordination is needed after active treatment, including use of an exit interview and delivery of services that are more congruent and better timed to meet ongoing and emergent survivorship needs.

Original languageEnglish (US)
Pages (from-to)175-198
Number of pages24
JournalJournal of Psychosocial Oncology
Volume29
Issue number2
DOIs
StatePublished - Mar 2011

Fingerprint

Lymphoma
Leukemia
Interviews
Patient Transfer
Withholding Treatment
Continuity of Patient Care
Information Services
Therapeutics

Keywords

  • care coordination
  • care transitions
  • health services
  • oncology health services research
  • psycho-oncology
  • reentry
  • survivorship

ASJC Scopus subject areas

  • Applied Psychology
  • Oncology
  • Psychiatry and Mental health

Cite this

Working without a net : Leukemia and lymphoma survivors' perspectives on care delivery at end-of-treatment and beyond. / Parry, Carla; Morningstar, Elizabeth; Kendall, Jeffery; Coleman, Eric A.

In: Journal of Psychosocial Oncology, Vol. 29, No. 2, 03.2011, p. 175-198.

Research output: Contribution to journalArticle

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